Support Group for Moms, Dads, Grandparents and other caregivers of Babies with Infant Reflux and GERD  - InfantRefluxDisease.com

Reply
 
Thread Tools Display Modes
Old 11-06-2009, 08:32 AM   #1
Laura56
Newbie
 
Join Date: Nov 2009
Posts: 5
Rep Power: 0 Laura56 is an unknown quantity at this point
New here.. 12 mon old who can't get off of enfamil AR
My daughter just turned 1 on 10/29. She was diagnosed with reflux at 2 weeks old and started on Zantac at 2 weeks. I started her on Enfamil AR at 2 months after the pedi (not the one I normally went to) said she had a soy and protein allergy and put her on nurtamigen which she vomited even worse on. I just put her on the AR myself. She did wonderfully! She still spit up but no where near what she used to do and she didn't scream with it! She saw the GI dr at 7 weeks and graduated at 5 months when they took her off of Zantac. She spit up regularly.. probably every feeding.. until 8 months and then several times a week until 9 months. I tried to switch her to regular Enfamil at a little over 10 months and she projectile vomited all 4 oz! So back to AR. When she turned 1 I started giving her milk and almond milk and she was refluxing it but not vomiting. She was gagging on it but thankfully not coming out! I can hear her refluxing and can feel it in her chest. She won't really drink much besides AR cause it probably hurts. So again she is back on AR. I made an appt with her GI dr again but they can't see her until Dec 3rd and that was cause there was a cancellation.. they are booking into Jan. Thankfully this has never affected her weight.. she was 22 lbs 12 oz at her 12 month appt. But it is a pain in the butt to keep buying AR when she should be off of it! I posted a topic in Older Children as well with lots of questions about how she will do and what to do. But wanted to introduce myself as well. This is just so frustrating cause I was told she would mostly outgrow this by 9 months and completely outgrow it by 12 months and that is not the case. Her pedi (the one I normally go to) I love! He has always immediately treated what I see and never questioned me and immediately sent her to specialists... he even ordered her an apnea monitor until 6 months old cause of the reflux since she was vomiting in her sleep! He is a Godsend! But he is talking about starting the Zantac again with her until going to the GI dr. I HATE the idea of giving her meds every day! She hated taking Zantac when she was an infant.. how is it gonna be now?!? She is fine as long as she doesn't drink any thin liquids and only takes the AR. So that is us! Still have no idea what I am going to do.. guess just wait until the GI dr and keep her on AR until then!
Laura56 is offline   Reply With Quote
Old 11-06-2009, 08:47 AM   #2
Litterbox
GERD GURU
 
Litterbox's Avatar
 
Join Date: Mar 2008
Location: Springfield, Missouri
Posts: 1,265
Rep Power: 38 Litterbox is a name known to allLitterbox is a name known to allLitterbox is a name known to allLitterbox is a name known to allLitterbox is a name known to allLitterbox is a name known to all
Awards Showcase
1,000th Post:  - Issue reason: Congratulations on 1000 posts!!!! WTG! Thanks for all your support! 1st IRDiversary:  - Issue reason: Congratulations!  You have been IRDing for over a year now!  Thank you for all your support. Halloween Competition: Halloween Competition Winner - Issue reason: Halloween Competition 08 Winner! Denver Infant Toddler Boys 500th Post:  - Issue reason: Seleta, thanks for being here!  Big congrats on 500 posts!!! 
Total Awards: 4
Re: New here.. 12 mon old who can't get off of enfamil AR
I know the formula is expensive, but there are several kiddos on the board that are still drinking some kind of formula for whatever reason. I wouldn't stress too much about it. My DS is almost 2 years old and still is on Prosobee. It's even approved through WIC under special circumstances through age 3, I think. Wait until you see the GI and see what they have to say. There are some Next Step formulas out there too that are specifically formulated for toddlers. I can understand the frustration of not wanting to go back to meds. They are sometimes expensive, and difficult to give, but if it means less problems it might be worth it. Glad the GI is going to see you in December though. Welcome to IRD too!!!
__________________
Denver
Diagnosis: ALTE, Bradycardia, GERD, Laryngomalacia, Dysphagia, Gastrointestinal Webbing

Tests: EEG, EKG, Echo, 2 Swallow Studies, 4 Upper GI's with barium, pH Probe, Pro Fox

Therapies Tried: Infamil AR, Nutramigen, Reglan, Prilosec, Zantac

Current Therapy: Prosobee NS, Prevacid, LADD and Pyloroplasty {May 2008}
Birthday: February 7, 2008
Litterbox is online now   Reply With Quote
Old 11-06-2009, 09:16 AM   #3
Laura56
Newbie
 
Join Date: Nov 2009
Posts: 5
Rep Power: 0 Laura56 is an unknown quantity at this point
Re: New here.. 12 mon old who can't get off of enfamil AR
Thank you for the welcome. I would rather keep her on the formula than put her on meds. I tried the Next Step but it's too thin for her and I would have to thicken it anyway so I would rather just stay on AR. Sometimes I wish I could get approved for WIC but I make too much money. I just find good sales on it. For her even the ready to feed AR is too thin for her and makes her gag slightly.
Laura56 is offline   Reply With Quote
Old 11-06-2009, 03:35 PM   #4
Emma`s mommy
IRD Addict
 
Emma`s mommy's Avatar
 
Join Date: Sep 2008
Location: CALIFORNIA
Posts: 709
Rep Power: 25 Emma`s mommy is a jewel in the roughEmma`s mommy is a jewel in the roughEmma`s mommy is a jewel in the roughEmma`s mommy is a jewel in the rough
Re: New here.. 12 mon old who can't get off of enfamil AR
Our pead actually suggested Emma staying on Alimentum till 18 m and than we will go from there ( she is 17m now)-when the kiddoes need it, they need it for a reason..listen to your instincts....we are slowly introducing Goats milk as Emma reacts to dairy...

..also some kids DO outgrow reflux by 12 m BUT MANY DO NOT..

GOOD LUCK!!!
Eva.
__________________
Eva, happily married to Richard ( Irish lads are soo handsome!
Mommy to -Jack, my red hair prince , born 2/22/2006- reflux at birth, tongue-tie ,resolved via surgery May 08; Metatarsus Adductus -3rd degree ( At birth), Congenital muscular torticollis , resolved via surgery June 2007.OT/PT/Speech for the first 2 yr.
Dairy / soy allergy.
- Emma, my reddish blondish beauty so far, born June 2nd, 08,via C-section, born tongue-tie, reflux noticed at birth, diagnosed at 3 months, on Alimentum + Oatmeal since 3 m old
Dairy / soy allergy, 14.5 mg Prevacid since 3 months old, dairy trial @ 11 m failed, GI / skin reaction to every food introduced.
-UGI done , July 09-no atypical findings
Emma`s mommy is offline   Reply With Quote
Old 11-06-2009, 04:17 PM   #5
sixdogssixcats
Hey baby, don't mess with Texas!

 
sixdogssixcats's Avatar
 
Join Date: Mar 2005
Location: San Antonio, TX
Posts: 10,001
Rep Power: 500 sixdogssixcats is a splendid one to beholdsixdogssixcats is a splendid one to beholdsixdogssixcats is a splendid one to beholdsixdogssixcats is a splendid one to beholdsixdogssixcats is a splendid one to beholdsixdogssixcats is a splendid one to beholdsixdogssixcats is a splendid one to behold
Awards Showcase
IRD addict: A total addict has at least 5000 posts and loves to IRD!!! - Issue reason: For falling down all 12 of the IRD steps! 9,000th Post:  - Issue reason: Congratulations Lesley on 9000 posts! WTG! Finally a 30 pound member!: Congratulations! This one is one to celebrate! - Issue reason: YAY Catherine!!! Welcome to the club! 8,000th Post:  - Issue reason: Hooray for 8,000 posts!  Thanks for all the love and support, Lesley! 
Total Awards: 6
Re: New here.. 12 mon old who can't get off of enfamil AR
My daughter was on Alimentum until she was 2. While children typically transition to cow milk (or a "milk" product) around 12 months, there is no harm in continuing to provide formula. Especially if the child is consuming a variety of table foods. The only concern is if infant formula becomes the sole source of nutrition for an older child as an older child's body needs different nutrients than an infant. Formula use for older children should be managed by a doctor so it's nutritionally appropriate, but at 12 months, this is not something you need to worry about.
__________________
Lesley
Mom to Trey (6/27/95) - ADD (Vyvanse)
Catherine (1/18/05) - MSPI, celiac disease, inverse, guttate and plaque psoriasis. Verdeso, Luxiq, Elidel as needed. Gluten-free.


We could never learn to be brave and patient if there were only joy in the world.
Helen Keller
sixdogssixcats is offline   Reply With Quote
Old 11-06-2009, 09:27 PM   #6
andrea
GERD GURU
 
andrea's Avatar
 
Join Date: Oct 2007
Posts: 2,302
Rep Power: 78 andrea has a reputation beyond reputeandrea has a reputation beyond reputeandrea has a reputation beyond reputeandrea has a reputation beyond reputeandrea has a reputation beyond reputeandrea has a reputation beyond reputeandrea has a reputation beyond reputeandrea has a reputation beyond reputeandrea has a reputation beyond reputeandrea has a reputation beyond reputeandrea has a reputation beyond repute
Awards Showcase
2,000th Post:  - Issue reason: Congratulations Andrea on 2000 posts!!!! Thank you!!! You are a star!: You can be a star poster, star helper or star listener - Issue reason: This is about as close as I can get to a  1,000th Post:  - Issue reason: Congrats on a very belated 1000K! It's a GIRL award!:  - Issue reason: Welcome to the world, Miss Avery! 
Total Awards: 6
Re: New here.. 12 mon old who can't get off of enfamil AR
While I agree that giving meds is not always pleasant, if she needs it, she needs it if you know what I mean. With that said, if shes doing totally fine on the Enfamil AR, then no reason to rock the boat! The only other suggestion I have, if you want to move to a toddler formula, is that you can always just add rice cereal to it yourself (Thats basically what the AR formulas are - just pre-thickened for you). You'll want to ask your ped about how much to put in it (or some of the other moms here who have gone that route might be helpful). It might work out cheaper than buying the AR formula? I dont know - we never used it.

Also just wanted to echo what the other moms said about it not being a big deal that she is still on an infant formula. My son was on infant formula until he was almost 2 - then we finally got him switched to pediasure, which he is still on now. You definitely dont need to "worry" that shes on an infant formula for at least 6 months

Anyway, good luck and welcome here!
__________________

Hunter - 4/30/2007
-GERD diagnosed at 3.5months old
-Slow weight gain/FTT
-60mg Prilosec, 34g Miralax daily + behavioral feeding therapy

Avery - 2/20/2009
-Piggy little eater
-NO meds
andrea is offline   Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Anybody tried Enfamil Gentlease? wemma18 Bottle Feeding 7 02-20-2009 09:23 PM
enfamil next step? Kristenrn23 Constipation and Stools 4 09-13-2007 09:58 PM
Enfamil AR and Zantac Info.... Liam's Mommy Feeding Issues 9 08-27-2006 12:40 PM
Any babies using Enfamil AR or Enfamil A+ for babies who spit up (in Canada)? Alexandgabysmom Constipation and Stools 4 01-23-2006 02:13 PM
Enfamil Gentlease and AR checks Summer2 Questions and Miscellaneous 1 10-28-2005 07:07 PM


All times are GMT -5. The time now is 11:06 PM.


Design by Vjacheslav Trushkin, color scheme by ColorizeIt!.
Powered by vBulletin Version 3.6.1
Copyright ©2000 - 2009, Jelsoft Enterprises Ltd.