Noah is not doing well and we really need prayers. He is scheduled for a broviac placement for TPN on Friday. I will try to update when I get the kids settled.

Oh, man, Katy, I am sorry to hear that. You all are in my prayers. I hate hearing this!!! Its just not fair for him, is it? Please update when you can. I will be thinking of you guys ((((hugs)))

I will keep Noah in my thoughts and prayers..........

{{{{{{{HUGS}}}}}}}}}}}}}}

How long are they planning to do the TPN for? (I'm sort of clueless about this, but I GOOGLED it, and read a bit about it). :oops:

Noah certainly is a little trooper! Prayers for you all to get through this.

Count on prayers here, Katy! I am so sorry that your little man has to undergo this.

{{{hugs}}}

Do take care of yourself, too.

Oh, Noah! So he really is not handling food at all right now? Is it still going right through him? I hope the procedure goes well and Noah sees improvement really soon.

You will also be in our prayers right now too. Hope Noah gets well soon!

Thinking of you and praying that things go smoothly. Sometimes life just is not fair.

If prayers can heal, Noah will be well very soon. We are all praying for you.

Jean

We will be thinking of you. Sam was on TPN for awhile after his surgery, I hope it is not long term.

Katy,

Just checking in. Wondering whats going on. How are things? Update when you can... Poor little one. We love you guys!

Hello All,
Well, Noah is just being a little stinker right now. he always ends up with some big medical ordeal right before Christmas. I think it is his goal to land up in the hospital for Christmas. He is just a mess, we are hoping once we get over to UCLA next Wed, the 22nd that we will have a better idea if what we are up against. For now it appears that he is having a hard time for several reasons, besides the totally out of controll silent reflux thats happening, the fundo being in really bad shape, the sinus infection and the massive ear infection that just won't budge away (he's going on 4 months with that one), the major GI side effects from all of the antibiotics, the coughing, the pain he's in, You would think by now someone would have something to help these kids.

You have our prayers and I will pass your request along to my prayer chain. God bless you and your family. and my you get a Christmas mirical this year.

Sue

Oh my goodness, wow! Poor little guy? Your going to UCLA??? I didn't know that. Who are you seeing? I was hoping you could respond to someone in questions who is asking about LA GIs. I know you will have the best advice for that.... :) Keep me posted. I wonder about you two!

Erin,
Yes!!! The day is finally approaching !!! We are thinking of it as a huge Christmas Gift, how sad is that ?? we are seeing Dr. Amendt, (I think you spell it like that) he's supposed to be the best with multiple fundo kids. We need to be there at 9:00am. Is it crowded down there in the am time ?/

Oh Lord yes, to us anyway, it may not mean a thing to you, but it is bad. INSANE is more like it, I could have walked faster! And the parking and finding the right building...Go early and if it isn't bad you can walk around a bit, or go say HI to Dr. Atkinson for us:xmas1: There are 3 buildings there. So, of course we went to all the wrong ones LOL

Are you both in the LA area? Maybe add to your Christmas gift a nice room at the nearest hotel the night before :sign7: That is one of the biggest reasons I am out of LA. I felt like a monkey in an over crouded cage. :blob3: Wish you luck and we are praying for that mirical.
Sue

We are planning on leaving early beings we come into L.A. from the Orange County Area so the traffic SUCKS !!! I figure it will take about 2 hours to get there and then about an additional 30minutes to figure out where to go once we get there. We stay out of L.A. at all costs. I've never been to that hospital but, the map they sent us to find the building is so confusing :)

Best wishes, Katy!

I you are real concerned about finding where you need to go I could ask my mom for better directions. She is very formilure with UCLA and might have some ideas for you.

sue

we stayed at a place for families visiting there. You get a discount too, if you want the info let me know and I will look into. It was so worth it!:xmas1:

Sue, that would be great the paper says to be at the Children's Health Center, at 200 UCLA Medical Plaza Suite 265 @ 9:00am. Erin, the map quest shows it will take us almost an hour to get there on the freeway, so I figure we need to give it 2 hours to get there with traffic because of the stupid freeways, you know how lovely they can be. So, I guess I just need to know how long once we get in the local area of UCLA will it take to find the right building, cause it says if you are late they will reschedule you. Plus it says to be 15 minutes early for the appointment. Hmmm, I hate L.A. soooo much and the wonderful 10 freeway, in fact last summer I was working part time for what I thought would be a nice break from the kids 2 days a week for a few hours, it turned into me being the errand girl for a guy that sent to L.A. every stinking time on the 10 freeway. i always told Tim I wanted a shirt that said, "I love the 10 Freeway" :)

Boy, you have been through a lot again. I hope that the trip goes well for you and that there are NO traffic issues! May you pull the very best of the best GI and have Noah and your family home in time for a nice and peaceful Christmas.

{{{hugs}}}

Hmm, we had good and bad as you know how that goes. I would plan an hour once on the 10 just incase, that will hopefully give you enough time to get through the 10 and figure out where to park and go....

OK, rethinking this, maybe even 2... but that may be too long.

Is there anything cool to see down there if we get there too early ????

NO.... LOL

The street heading into it has shops and stuff if you get there early, MdDonalds I think too, Oh, there is a little museum on the corner... Hmmm you could try that :-D

Yeah better early than late man I am gonna have to get up so early.

I am sorry I didn't get back to you sooner. I hope I am not to late as I don't know when you apt is but my mom said that UCLA is very confusing so fallow directions that lead you to the hopspital parking and ask the very first person you see how to get where you are going. She also said that you can't be to careful with the time because you never know how the trafic will be since you are having to get there around rush hour. She did say that they will only give you a five minute window before they reschedule.

She said to tell you sorry she wasn't able to be of more help

Sue

Thank you Sue !!! that helps alot. Our appointment is this Thursday tell your mom thank you very much for the advice.

Katy, we'll be thinking of you.....praying that all goes well.

take care
Jean

Hi Katy! I just joined the website and have no idea how you all have all this info when you post a thread. I have been thinking of Noah so much and have been anxiously waiting to see what Dr. Amendt says. You and Noah are in our prayers.......Please let us know as soon as you return!

Well Katy, I have ONLY just seen this thread (sorry!).
I am hoping that your appt. at UCLA goes well.. sounds like it may be a long day with all that traffic- eek!
Thoughts and prayers for you and Noah.
BTW your christmas card arrived- you have a beautiful family! :-)
Looking forward to hearing how things go.....

I'm sorry Noah is having such a hard time. Thoughts and prayers coming from me. Keep strong.
Rachel