I do not understand. :?: Our poops are always watery and mucousy. He poopees more than he pee pees. His behind gets so raw he bleeds. The diaper cost is killing us.

Anybody else have poopee like Tavin? :dontknow:

Hmmm, water, mucousy, and diaper rash sounds like it could be an allergy... :( What formula is he on? (Or do you BF?) N's poops have always been greenish, and never constipated, but the mucousy stopped when we changed formulas...

Well we know he is allergic to milk and soy so we have been on Nutram. I still BF and have been on a milk and soy free diet. We have been very strict about his diet because they think the allergy has contributed to his GI bleeds.

What else could he be allergic to? :roll: He is not eating much of anything these days.

Thank you! :wink:

It could be from the Nutramigen....it can cause stools to be very runny and often. Is there blood in it?

Oh, poor wee Tavin (((HUGS))) His poor butt. :( It does sound like an allergy... if he's not having much else.. it could be the formula or it could be something else in YOUR diet. But what???? Hmmmm. He should be doing more peeing than pooing... what does your pedi say about that??
(((HUGS)))

We just came off of nutramigen a couple of months ago and if I remember correctly, there is still milk product in it. Neocate is the completely milk and milk ingredient free one. We were on nutramigen and Iain still had so many problems that the ped and GI said neocate was next if his biopsies came back positive for milk allergy. Take a look on the tin for any of the following:

Milk
Milk ingredients
Whey
Casein

I think it is whey that is in nutramigen.

Mucousy stools do suggest allergy. However, they can also suggest constipation, too. Often, a mucousy stool will come with diahrrea as well.
Are you sure that all of the above ingredients are out of your diet, too? It is nearly impossible to make sure it is all out. You will find milk in the oddest places, including luncheon meats.

Do you anve another GI appointment soon?

When we were choosing milk formula, I remember the lactaction consultant telling me (esp. for prem babies) that you should have a whey based formula, as opposed to casein. I can't really help with the formula side of things because I live in New Zealand and they are different brands. Whey dominant formulas still tend to be based on cows milk proteins though. UGH! It's hard to get something that works :roll: :roll: We went through 3 formulas before we found one that MAtthew could tolerate, and it is whey dominant.

:P WOW, thank you for all your thoughts. I would have never thought to look on the ingredients of the formula his docs perscribed.
I cannot understand why the docs who tested him for milk and soy allergy would give him formula with those exact ingredients. I looked at the formula and it says casein and soy. The two things they tested him for using the RAST blood test. Boy that really frustrates me. I have been eating nothing but fresh veggies and chicken to make him feel better and for what?

Geese, his bleeding gets so bad sometimes his hemoglobin drops to 8. We have to test his stools periodically at home with the hemmocult cards and have his blood drawn every two weeks. If they make us do all this, why would they even risk the smallest amounts of soy or milk products?!?! :evil:

I agree! That would make me soooooooooo angry. :x

Can you call your GI tomorrow and see if you can try Neocate? I know it is expensive, but it is not soy or milk based.

Poor little guy. :(

And poor you! :?

They would prescribe it because it is partially digested and most kids would be fine on it. Sounds like your child is not. I remembered later it is casein in it and soy and was about to post when I saw your reply. :) I had the same thoughts when we were investigating Iain for milk problems and wondered why on earth we would give him it anyway, but it is not the same as other formulas and is indeed much gentler. Often the docs try to keep going down the list for less offensive rather than go to the last effort first. It is actually best to have tried nutramigen first.

I am surprised though with his GI problems that they have not put him over to neocate by now. :?

I am so sorry and feel your frustration.

{{{hugs}}}

amelia has a very runny butt with nutram, but once we switched to neocate her butts been normal. neocate might be worth a try.
good luck!

They try the hypo forumlas first because most babies with allergies and intolerances do fine on it. The protein that is responsible for the allergic reaction is broken down enough that the body often doesnt react to it. Babies with very severe reactions to milk protein though may still be bothered by it.

Mummy,
Your little one is sounding more & more like my Noah. I swear Noah at his worst would poop watery liquid stools 12+ times a day, in fact at one time Noah would be dead asleep and his bowels would just let loose. He was impossible to train in fact he was almost four years old. In fact Noah's poops were the 1st reason we ever saw a GI Dr. in the first place. We have yet to have found the cause for his pooping. The only diet we ever saw a semi-formed stool from Noah was on the Gluten Free diet, which was a pain to keep. Noah's bum was always bleeding, we always ran out of diapers, and clean clothes along with clean bedding. I used to think I would surley go insane from changing him so often and the smell OMG !!!!!! :shock:

Mummy,
Your little one is sounding more & more like my Noah. I swear Noah at his worst would poop watery liquid stools 12+ times a day, in fact at one time Noah would be dead asleep and his bowels would just let loose. He was impossible to train in fact he was almost four years old. In fact Noah's poops were the 1st reason we ever saw a GI Dr. in the first place. We have yet to have found the cause for his pooping. The only diet we ever saw a semi-formed stool from Noah was on the Gluten Free diet, which was a pain to keep. Noah's bum was always bleeding, we always ran out of diapers, and clean clothes along with clean bedding. I used to think I would surley go insane from changing him so often and the smell OMG !!!!!! :shock:

Katy, did they ever say that he was a stool holder at all? Your problems sounds like Curran's. He has those same problems and he just turned 4! We were going to do the gluten free diet (I know it is a pain as we researched it and were prepared for it, but the ped said no as the celiac test came back negative when he was 2.5 years.) and have tried so many other things, but nothing really seems to help. The smell is incredible.

Was his bum bleeding due to irritiation or was it coming from something like hemorroids, fissures, something inside? I am so lucky that Curran no longer has yeast infections and rarely gets diaper rash. He still wears a pullup and the school is giving me grief, so I had the doctor write a note for it. :roll:

Curran literally has no control. One minute he is clean, then WHOP! There it is!

They at one time tried to say Noah was a stool holder which I found to be a whole lot of B.S. because this kids would literally just explode. Noah's Celiac;s came back negative several times as well however Noah's blood IGG (anti-gliandin) has always been very very high over 270 and recently he has jumped to over 300. The normal number is something like over 17 or something for a positive, but Noah's biopsies always have come back negative go figure ??? :roll: Noah has always been so rare with his symptoms i'm kinda glad (well you know what I mean not glad in a giddy way) that there really are other kids out there like Noah. The one consistant thing I have seen over the years and across the U.S. is that I have only run into boys with this problem along with the blood being positive and not the biopsies. As for GF diet we are all for it, it did help Noah tremendously when he was eating well for us by mouth. Now it is so rare we try to let him eat whatever he wants. As for the blood, Noah has had blood from his intestines, lower colon, fissures, ect. It has always been from different unexplained sources.

Katy was he ever checked for cdif? Sounds EXACTLY like Alexys, she has had cdif for 8months now. I was just curious if he was ever tested for it. They symptoms are exactly the same, she poops at least 8-12 times a day, and it is WAY smelly. Very watery and explosive too.

Gee, Katy! That is awful that he has had so much testing done and no answers yet for it. Curran has only had the one celiac test and it was nearly 2 years ago now when I think about it (and I know you can get false negatives for it) I do not think he has celiac sprue, although we do have some crohn's and celiac plus other risk factors in the family (thyroid). What really gets me it that the GI we are with has NEVER tested him for anything and maintains he is a stool holder. We get all sorts of stuff from him including this sticky, smelly, rice stuff which the GI maintains is old stool. We get the mucous stools from time to time now as well, but not as often as we did, thankfully. The gelatinous ones make me want to move. :roll: Curran literally explodes, too. Right up his back and down his legs. GI says that it is the overflow poop and he can not control it.

I do not think that Curran's IGG has ever been tested, but I will check that out. What I do know is that he has a abnormally high SED rate and it was scary high at one point. THe ped thinks that indicates esphagitis and that it will reduce now that he is on prevacid. Really, I am not convinced as I can find NOTHING that says esophagitis can be determined this way.

Curran does not bleed, thankfully. How scary that Noah does and they can not find a source. :shock: We suspect that he does have fissures or tears, but again that is speculation on the GI part.


Amy, I did not realize that Alexys is not over her CDIF. This is quite the marathon you are undergoing!

She WAS over it Leigh, then after this last round of antibiotics it came back full force. :roll:

What is CDIF ? As far as I know Noah has been tested for everything. We have done so many 72 hours stool collections I should receive a bonus for being Noah's mommy :) He has minor malabsorption, no normal flora found in his stools or colon biopsie ever, he alwaya has an elevated SED rate but, that test really just shows a current infection or inflammation, which hello, I'd think if your pooping your head off your gonna have some inflammation. Okay, now that I am typing here I think I know what the CDIF is, is that the infection you can get in your bowels from anti-biotics ? Clostridium Difficile ?? My oldest daughter had that and it lander her in the hospital for over a month when she was almost a year old. Scary Scary Scary !!!! Noah definantly doesn't have that he's always tested for that beings he takes so many antibiotics. We have never ever found any cause for the loose stools it is a mystery...I wish we knew but, only time will tell. The GI's are convinced that there a way more underlying issues with Noah and that as he gets older they will show themselves. We have a long history of Autoimmune disorders like Osteo Mylitis. as well as Chrohns disease.

She WAS over it Leigh, then after this last round of antibiotics it came back full force. :roll:

Oh, NO! :cry: I am so sorry, Amy. Like she needed that again. Are you winning the battle this time a bit faster? I sure hope so.

Katy, our ped is the one who has done the testing for Curran, not our GI. I go to see him on Thursday and will broach the increased SED rate to him. Really, my gut is telling me that it is so much more than a stool holding issue as he is miserable. His breath reeks again tonight and he was "off" all day again today. He is such a great kid, but when his gut is bothering him he is just a terror.

Any sticky "rice" stuff in Noah's stools? The run of gelatinous ones were, um a nice change for a few months, but I have never got down to the cause of the sticky rice and sandy stools with the blowouts. Our GI maintains they are old stool. I just want to know if anyone else has the same thing as I have not found anyone yet with that consistency and many are labelled stool holders.

Can one actually have mild malabsorption issues? Wow. Would that be the celiac or crohn's you are thinking of and why Noah did better without gluten, if I remember correctly? Oh, Katy. {{{hugs}}} I do so hope that it is sooner rather than later that you get answers for poor Noah.

Yes, we had alot of small sticky stringy looking rice like stools as well as what I called the sticky goldfish food poops, it was like the shape and thinness of goldfish flakes. As for gelatin poops, mucus, ect...We have had them all.