I have not posted because Justin was doing so well and didnt want to jinx anyting. He had been eating for the last four weeks with no pain or retching. He has also been able to maintain his weight so we didnt have to do any feeds. This lasted until this past weekend. Saturday he started to feel full and had abdominal pain,and when eating made it worse. We seemed to vent all most all night with no relief. Sunday he got up and ate some but not much through out the day but continued to have pain and the full feeling. Called the doc monday and told us to stop eating again and start the jfeeds. Justin can have some oral but very little but it contiues to hurt and he needs to vent when done eating. The feeds are going well and if he doesnt take anything oral he feels fine.

I am not sure what happened but it drives me crazy because no one can give us answers why he cycles like this. What is fustrating is that these cycles are coming more frequently with less good times inbetween. So again we wait and see what happens next. Thanks for listening just needed to vent this.

Melanie.

Oh (((((hugs)))), I know that is frustrating, how old is Justin?

Hope things get better soon!


Shannon

Oh no Melanie!!! (((HUGS))) :smt056 So sorry about the pain and J-feeds again! The poor little guy!

(((HUGS))) Melanie and Justin! I'm sorry to hear that the reflux roller coaster has hit again and that you're back to tube feeds. I hope that things improve quickly! Please keep us updated!