Savannah had her scope. And It was up there with the top 5 wost experiences of my life. The poor thing was petrofide.

I bribed her by renting her movies for the 1 1/2 hour drive. Worked like a charm. I didn't think ahead though. We got there and she wouldn't get out of the car. So i had to drag her and her booster out of the car and pry her hand from the seat.

Then I got her into the lobby and set her down to sign some papers and she darted out the door. Just as we were getting back into the lobby they called her name and with her flug over my shoulder We tried to get her into the back room. She grabbed at statues and door jams. We finally got her in and they decided to put her in a private room because she was histarical and they wanted to be able to close the door.

Once we were in the room she wedged herself under the table and I couldn't get her out. It was decided that we would have to drug her to calm her down. So I turned the movie back on and talked her out from under the table. We gave her the med with the idea that she would be a cooperative drunk (from what the doc said). NO! she became a very mean drunk. Her time for the prosidure came and went and they waited until she was really drugged and it wasn't going to happen so they told us they would go ahead and just go. We gave her a choose of being carried or ride on the table and she said I want to go home. After a bit of banter back and forth she deceided to be carried. As soon as we got to the door she started grasping at door jams, curtains, other people. We had people walking behind us to help us pry her fingers off of things. When we finally got her in the room she let out the worst scream that I think I have ever heard. three of us then had to wrestle her to the bed and they put the mask on her face. And can you believe the child held her breath.

Then when she woke up. she acted very sweet to the nurse but as soon as she turned her back Savannah would shoot daggers at me. She was so angry. I think she was angry but needed someone to be mad at so boy she really was not nice to me for a while. After she was fully awake she was a little more like her sweet self.

So the verdict: with the visual part of the test she had moderate esophogitus witch was great news because we were preparing ourselves for major damage. Doc said it was bad enough that she should have been in pain but she wan't???? They also attached a PH probe and did some biopsys so we will know more in a few days. All in all it was good news cuz it could have been worse. Doc also said that he thinks she is treatable if we can find a med that will work. The only problem is we wont really know when it stops working cuz she doesn't feel it. She is one of those kiddos that we have to keep taking her off and then putting her on something else then the switching back. Does anyone else have that problem?

Boy what a day. I think I am going to eat some ice cream.:drinkalot:

Talk about testing you Mom strength! I don't know what I would do if Eric was scared like that. I mean the whole thing is bad enough. The guilt, the fear of something bad happening to them, the waiting, etc:hug::hug::hug::hug:
I'm so sorry she was so scared and angry.
I'm so sorry she had to have another one...sigh...
I absolutely HATE what our kids have to do!
an dI hate that we are the ones that have to make it happen

May the next few days go smoothly and you get your biopsies back quickly and get a good plan going that works.

As for med switches and off and on meds....

Axid, and nexium are the only reflux meds left that we haven't tried. They all work and they all don't work KWIM?

Sue, I am soooo sorry that was so rough on BOTH of you. :hug:!!! I hope all goes well and you get good data from the probe.

What meds has she been on? Nexium is now working pretty well for Ava and it's a liquid...it comes in a packet (10mg) and I mix w/ about 9 ml of water to make 10 ml. Ava's is tubed, but I've tasted it and it really is mild and just kinda sweet...nothing bad at all. Might be a good option. Ava is taking 10 mg twice a day, but we've got lots of room to move w/ that dose.

:hug: I hope you guys can get a good plan together!

That is so sad, poor girl.:sad5: I hope they are able to come up with a good plan for her after all of that.

She was put on Nexium (10mg x2). The ph probe was a wash. they can't find the results GRRRR. Because it was such a issue for her and it was such an important test i am so angry about it.

Since Savannah doesn't feel the pain of GERD we needed to know the levels to see if we needed to up her nexium. Since the tooth went bad so fast, the thought was it was high but doc doesn't want to up her if it's not necessary.

thanks for the thoughts. Oh and that really cute pic of that really cute guy:oops:

:( and :hairpull: and :censored:, Sue! I cannot believe they "can't find" the results...that's BS!!!

Ava's also on 10 mg BID. It's been a help, but I'm sure you could easily go up to 40 and see if that makes a difference. Do they have any idea why she doesn't feel pain?

:hug: I'm sorry you guys are back again. :(

They can't find it!!!! That is just crazy!!!! How can they put a kid though all of that and loose the results. I am so sorry it turned out to be a waist of time.

UGH! I would be so mad!:favorites21:
What a test to lose!

UGH:hairpull: just UGH

What a nightmare! And I can't believe they lost the results! Sod the ice cream... get the beer!

OK so now that we have all the information. apparently the brovo was not places correctly and it only got about 1 hour of reading. useless! We tried her on the nexium 20mg and she was in a lot of pain so we upped it to 40mg and she got really really sick and major cramping. so I took her off the meds completely. the RN called and we thought we would try 20 mg nexium and at night we would try carafate, Still cramping and not eating. She also didn't look right. So I put her back on prilosec20.6mg in the AM and 20.6 in the PM. Still a lot of pain. So I called again. the doc was on vacation so I talked with the PA. she said that she found some kids react that way when they are over medicated. She said start over and give her 20 mg of prilosec and she also said to use carafate on the days she feels bad and we will go from there by starting over. She is sleeping throught the night again. phew!!!! the circles under her eyes are almost gone (what are those red circles anyway? I always wondered that). Her energy level is going back up but she kept having double over pain then they would go away about 2 or 3 times a week. the PA consulted the doc and told us we needed to go right to the hospital and get her x-rayed to make sure the bravo didn't get cought somewhere and causing an abses.

to get a tramatized child into a hospital with people in scrub to have an x-ray was heart breaking. luckly my neighbor is a radiologist and came to help me. He is so good with kids. It did take us about an hour to talk her into it. God bless Cary's patience but we got it and there was no bravo stuck in her gut. the x-ray was clear. phew again!

for the last two days she has not asked for carafate. But if we are even an hour late giving her prilosec she is complaining about "throwing up in her mouth". So i think 2x's a day is to much and 1 a day is not quite enough. and there it is, the rock and the hard place. I will need a padded room soon.

I am the type of person who worries. My grandma had it and called it a nervouse stomach and treated it like it was no big deal. today they call it an anxiety disorder and all this stuff with Savannah and my own crap has been so miserable. Than you add my son who has an aniphilactic allergy to masquitos (yes you read that right maspuitos). And now Savannah has these white spots on her knees that they are calling an auto imune malfunction due to all the stress. They also said it's heard to treat and can run down the length of her leggs. With all that is going on it seems it would be the least of the worry but it looks really bad. Poor thing. luckly, so far she doesn't seem to care that it is there. But all it will take is a thoughtless child making a snotty comment and she'll want it fixed and here is another thing I can't fix. But the thing that gets me the most is we put her through all that and we are back doing what we were doing before the scope and bravo. ROE!

She is complaining that she "doesn't like her body because it hurts her so much and makes her miss a lot of school" I explained we are trying to stop the hurt and as for missing school, I can't have her going to school if she is coughing. she throws up without worning and a 3rd grader doing that would be modifying. so until her coughs can be controled I keep her home.

Sorry for the book I think I needed to purge my frustration. pun totally intended:drinkalot: :hairpull: :censored: :censored: :censored:

thanks guys. it really means so much to me that you are out there understanding (unfortunatly) what i am going though (hugs)

I am sorry the probe did not read anything. I was thinking maybe you could either split the prilosec with 10 morning and night, I find splitting is the best thing we ever did with it. My son is on 30mg which is quite a high dose, so you may want to even look at going a little higher and maybe she won't get the cramping. We split ours three times a day.

A normal adult dose is only 20mg, so maybe it was just a little too much for her? If you can't get the dose any higher, you may want to add in zantac, carafete is good when there is inflammation or ulcers etc.. but it can interfere with the PPI a lot, so maybe switching to zantac 2 or 3 times a day will help.

How long was she off meds for? IT is so sad she is saying she hates her body cause it always hurts :hug: