View Full Version : How are all the older kids doing? and how are you emotionally?


Minnie
11-13-2008, 07:44 AM
GERD wise Eric is doing pretty good. I LOVE prilosec! and I went against the doctors orders (and my own instincts about the calcium carbonate it contains) and started giving him some pepcid complete around lunch time, and he seems to be completely covered. :yahoo:
I'm hoping to try axcid after the GI and I get to talk (FRIDAY!!!!:smt041 )
These past...what?... nine months of being on a steady dose of prilosec have been the best months of his life! NO weight loss, even after being sick a billion times since starting school. No weight loss in 9 whole months! This is the longest stretch of holding weight on that he has ever had, and I'm so happy for him.
Still, I wish it would just stop. :hissyfit: It doesn't hurt him anymore, and he handles everything just fine, but It still interrupts his little life, and I HATE that he has to deal with it. I hate that it's just the way it is for him! I still find myself wondering what he'd be like if he knew how it felt to feel good. I try to stop myself, but I do it and think of all the things that would be so different.
But, now that he's a communicator, and a pretty good one at that, life is so much easier, GERD is easier, and I'm so happy he's 4 rather than 4 months. BUt I feel like I wished a lot of time away with him. He's 4!!! How did that happen?! With Emilia I savored every little moment. Not to say time didn't go fast with her too, but most of my memories of Eric as a baby/toddler are more on the bitter side. I still can't stand watching a baby eat or sleep. It's weird, it makes me so happy, but at the same time I get so angry still. When will I get over it? Will I ever get over it?

I'm coming to a point where I think there must be something else wrong, something causing the GERD in there. I've never felt like this before, I mean, this sure about it not just being GERD and GERD alone. At first I thought it must be because he's older and your feeling a little desperate, but no... It's because things are kinda coming to a head he's getting sicker, developing new symptoms and problems, and I'm hopeful that maybe this year we'll get somewhere, and if not, it will be soon.
Until then, I wait for my Eric to get sicker, to give us more clues.
And I find myself wanting to scream "Will you just get so darn sick no doctor in the world could ignore you!!!!"
I don't like waiting! But that's what I do.

Sams Mum
11-14-2008, 03:29 AM
:hug: :hug: :hug: Minnie...

scarlet
11-14-2008, 06:53 AM
Minnie, you sound like I did in February, I was determined to find a link to everything, but got lots more symptoms and no diagnosis, but I do still think there is one.

The good thing is that we have a great team now, they know Parker and are working together. This year would be his best yet, he has been well for the most part, a few funny things, but things you just take in your stride KWIM?

Me personally, I don't think I am doing so well. I think I am mentally exhausted TBH. I have a lot more worry over things than I used to, especially with Parker, I just can't help it. Even though, he is so much better, I am worrying more, like when is he going to get worse, or has he really outgrown it...KWIM?

It doesn't help that life is just so busy, I just can't get anything I want done, I don't know where the time goes, I know we fit a lot into our lives, but still I just can't get it all done.

I am hoping with time, the feeling fades a bit and I won't worry as much about what has/hasn't happenned, and just enjoy it while it is there.

I truly understand your whole post Minnie, the highs and the lows/ I have been in the exact same position, all I can do is give :hug: