High all, We are back on the #$%$ing roller coaster. Excuse my language but I am sure you all understand my frustration. It has been two years since she was considered a full time GERDling. I am not sure what happened but one night I slept with her (well she slept. I laid there in disbilief) I could hear her every 5 minutes or so. I don't know how long this had been going on (which breaks my heart). The next morning I asked her about it. (For those of you who don't know little Miss Savannah she is a 7 year old Gerdling, from birth, who recovered at age 5 then apparently relapsed) She said that she "throws up in her mouth a lot" I asked what alot ment and she said she didn't know. I told her to start telling me every time she does. She was telling me 5-6 times on school days and even more on the week-end. She had a very bad cough at the time so I took her into the doc and she said Savannah has sinusitus and both that and the cough were being coused by reflux. We are suppose to go to the GI to see if she has done any damage to her esophogus (sp? You would think I would have remembered how to spell that by now) since we don't know how long this has been going on. I have not made the apt yet. I just don't want to go. I figure she is on meds right now so she is safe from any further damage, if any. And once we pull her from the meds in 6 month or so we can go then. Since I am so schooled on what she should look like in her throat, I wish I had a camera I could look myself. I think I might know more then the GI people. 7 years of experience.

On a brighter note. Savannah has lost 6 teeth. All at the same time too. She looks toothless and very very cute. We are going to treat the new teeth with tender love and care. I am floored at how damaged her baby teeth are. The tooth fairy has been very generous with guilt when she lost each tooth. Don't forget to keep reminding the "newbies" the importance of teeth brushing after a vomit and as meany times as these little ones will tolorate it.

Boy I will tell you. Savannah is such a birght little thing. She is reading 3rd grade books, she can draw great pictures, her math skills are impressive and she knows more then me about english. I am not smarter then a 1st grader apparently. I had to look up what a preposisional phrase was. She knew it and I still don't quite understand what it is.

We still have issues with over stimulation. It seems to be better if we keep her off of food coloring and preservative. Esspecially BHT and BHA. We are very close to me making everything from scratch. Whole foods is to expensive and other stores have the crap in it.

Does anyone out there have a seven year old? I am wondering how much if this wicked tantrums are normal melodrama or sensory over load or just plain un-ruley. She went from being easy most days to it being minute by minute and things could change without warning or warrent.

I finally went back to work. I am loving the break. I choose not to home school. the last summer break drove me to work. I am working very part time. In fact I think I pay to work if you add gas into it. I am a Victim Compensation assistant for the District Attourney's Office. For those if you in the states, it is a federal program and if you are the victim of a crime you may be eligable for federal finatial assistance.

I hope you all are doing well.
Thanks for reading
Sue

:hug:, Sue, and welcome back, although it's not under great circumstances. :sad5: I wish I had some advice, but I don't, really. I'd say go ahead and see the GI though, just in case. What meds/doses is she on now??

Welcome back! My little guy is almost 2 - so no advice here for an older gerdling. Someone will chime in.

Your kids are so cute BTW.

Hi Sue! Welcome back :hug: I am sorry to hear Savannah is having a flare up. Parker is now three and a half and still no sign of this stupid thing being 'outgrown' :rolling:

I have an almost 6 year old and I think unruley behaviour is just part and parcel, we have problems with food additives too, though I generally just keep an eye on as much colours and preservatives and we try to buy as much organic as we can, but it is so hard.

There is a diet if you think that there are other things she could be intolerent too and it is caled fedupwithfoodadditives, by Sue dengate, she has a website, she is Australian, but it is being followed through the world. That may have some ways or some things she can eat safely.

:hug:

Savannah is on previcid 30mg, I have no way of knowing how well it is working because she is so use to it she doesn't ever complain.

I will look into the "fedupwithfoodadditives. that looks interesting. We are now using the "Finegold diet" Sounds like it might be the similar.

Did any of you watch any of the CNN's day with Autism? They talked alot about diet and immunisation schedules.

Thanks for your welcome backs. I guess if I had to go through this some more you all are a great group of girls to do it with:hug:
Sue

OMGosh...this is so strange..I was just thinking of you and Savannah the other day and here you are.

Big hugs, it is so sad when you think they are doing better only to find out they really aren't

Shae-Lynne will be 8 in May. For some reason I thought Savannah was older than Shae. It is nice to hear that she is doing so well in school.

:hug:
Thanks for the update.

Wow. Jean and I must be on the same wavelength as I was thinking about Savannah a little while ago, too.

Good to see you, but not so good to see you. :( I know you will understand. ;)

It has struck me that some kids are just not going to 'outgrow' reflux. We have our good periods, but it is always there. Probably the same for Savannah. Something triggers it to come on strong and then you become aware of it again, just when you think it may be gone. My oldest is fine, although he does reflux from time to time, but the difference is astounding between him and my 6 year old who is a GERDling. And my 4 year old is still going strong in the reflux department. You probably missed that Iain has been diagnosed as being on the autism spectrum and it seems that it is easier to blame all his feeding issues on that and the reflux as well. *grr* Explain the 6 year old who is not on the spectrum?! I digress.

Behaviour right now is a concern with Curran. I have a lot on my plate right now, but tomorrow I am addressing it with our ped. Some of it is quite normal, but it depends on what is going on. Care to compare notes? maybe we can help see what she is going through and if it is indeed 'normal'. Don't you just hate that word?! Initially, when Curran was having some incredible moods we had him screened by a psychiatrist and the answer was that he is brilliant and his response was normal for a kid who was in constant pain. Good to know. :banghead: That was the only pearls of wisdom we got. :sad3:

Curran is actually off meds right now. He was taken off in December for an upper GI series in Feb and has remained off. We have had loads of episodes and yet as his scope 1.5 years ago showed no damage, we are supposed to stay off the meds. Um? He has puked on his plate every night the last week and countless number of times in the garbage can and toilet. Lovely. He actually considers this as normal. He pukes and then continues to eat around it. Nobody flinches at all, not even Walker. How sad is it that this is 'normal'? Savannah is probably so very used to it that it would be hard for her to describe anything as abnormal, since this is her normal. :( Curran just says the food went down the wrong pipe. Yeah, I guess it did an hour ago and felt like coming up again now? Oh, brother. Again, I digress.

I might suggest that a complementary drug such as Zantac short term might show improvement. It is not a solution for a kid like Savannah long term at all, but it may help at night as it always has for Iain (who is still going strong on prevacid and has his dose go up and down regularly). She just may need a stronger dose or a med change. Sounds like it to me.

We are here for you, Sue. As always. :hug:

I have to say, it was great to see the new pic of the critters. How much older they look!

So did you guy sumonds me or what. stop it :box2: lol

I have wondered if some of Savannah's issues aren't a spectrim thing. I have two autistic nephews and a niece with OCD. I don't htink that she would be bad enough at this point to be dieagnosed but she definately "wiggs out" and gets very emotional. Some times I don't know if it is a learned thing and we have to disipline it or its a central nervios system thing and she just can't help it. Some times it's a food thing. She is hypoglycemic and when her tank gets low she will act just like Julia Roberts in Steal Magnolia. She doesn't make sence she gets combative and you get juice in her and in about 15 min she is better. Now she is cating the same way sometimes even after she has eaten. So I don't know if she learned the behavior from her hypoglycemia and found that it was a good way to get what she wants or she or she or she....
:banghead:

we do have her on prilosec right now. But she still seems to "throw up in her mouth" . She is a bottomless pit though. She eats more in one sitting then she use to eat in a week. Thank God for that.

I am sorry to hear about ian's diagnosis. Watching what my nephews and sister go through it is difficult. Do you have all the resources to do some research yet? We have been dealing with autism for 10 years now so if I can help you in any way, let me know.

did you notices ian's symptoms started suddenly or what is notices within the first year? My 10 year old nephew started at about 10 months but the 3 year old suddenly started with loosing speach and behavior at about 18 month. The only odd thing that the three year old did started at birth. You couldn't put him down...ever. My sister held him for the first 12 months of his life. If you put him down he would do that histeracal cry, the one that sounds like they are being hurt. With my children I don't give them thier shots on the doc schedul. If they need 5 shots (counting the one with all three at three shots) I give them two and then three months later I'll go back for two more until they are done. I don't know if that's what happened to my nephews or it was something else that set it off but I am not taking any chances. And since sensory disorders and reflux go hand in hand with autism there may be a tendencey. I don't know. I just might be a parinod mom. People have told me I am sort of on the left spectrim where my family is conserned.

So does anyones daughter have tantrums like Julia Roberts during her diabetic attack? She has been tested for diabities and it was neg twice.

Good to hear from you ladies. thank you for thinking of me. It's nice to know I have a place to go where someone understands

Oh Jean, you have new grandbaby, Congratulations One of them I hadn't seen before
And Leigh, those kidos are cutie pies and getting so big.

Sue,
DARN IT! I was hoping to never see you again!!:sad5:
I'm so sorry
I'm glad you're here though :hug:

I don't know much about what's going on, but I do know that Eric's reflux can cause some major behavioral issues if he's not medicated well. So I'm sure her GERD isn't helping matters, even if it isn't the cause. I hope you see some improvement once things get back under control. :hug:

7 year old melt downs? My little girl is a drama queen, but I have to say, for her it wouldn't be normal, unless something major was wrong.