Hi

Maiya is 27 years old and still refluxing lots. Neurologically, she has no issues- good tone , etc. However, she often chokes on liquids. Her ped is stumped- why would a normal child have dysphagia.

Her GI discussed doing a sweat test, just because it was never done. Maiya is hysterical at the site of the hospital, and i need to minimize all tests because we are finally making gains socially, since we have decreased medical interventions.


I am not looking for a diagnosis- but need to make an informed decision as to whether i should put her thru it.

I have looked on line and can not find many good sites talking about early signs and symptoms of CF- other than SOB and stools.


What are the symptoms of CF in children?


Thannk you

johanne OTR

Jojo, try this link. It's a pretty basic introduction to CF and the testing. In fact, it can tell you everything that I can. There is a great demonstration of the sweat test on the site, so you know exactly what is involved.

http://www.ygyh.org/cf/whatisit.htm

Also, here is a link to the cystic fibrosis foundation:

http://www.cff.org/

I'm sorry this is so short tonight, I've had an incredibly busy day at work. If I'm leaving you with unanswered questions, please ask me again. I'm sure I will be much more eloquent after a good night's sleep.

bug had the sweat test.. it was acutally the easiest test she ever had done.. (the most stressful for me though) cuz i was scared to death that it could have been CF. Hannah didnt seem in pain or anything for the test. they tested hannah because of her failure to thrive and hypotonia at the time.. not eating... etc. sounds like your ped is just trying to rule things out.. good luck.