Today was Jaydens b-day party...things were going well until Steph brought in his cake and we started singing happy...he didn't seem to even notice as he was playing with a new toy my dd Eden shifted him towards his cake and apparently he began to have some kind of tremor/seizure ...I couldn't really see his face from where I was sitting and I was recording it until it got bad I stopped which now in retrospect I wish I had kept recording. When he tuned into the singing he started to kind of zone out, Steph noticed this at the end of the song ....she wanted to see what he was doing so she told everyone to sing it again...which they all did not realizing he was not well. I will post the video I have where you can see him pull his hands up and start to twist them at this time Steph said his eyes were half closed and fluttering he turned my direction with eyes closed but not by his own doing you could tell and he began to shake /tremor mostly his hands...it was very apparent at that point and we all were just in shock......my MIL/nurse had a full frontal view and she thinks it was a mild seizure. My DH picked him up and he stopped almost instantly ...whimpered a bit and it was over. We are thinking the monotone singing was to much for him sensory wise and he shut out subconsciously??? Not how we had hoped his birthday celebration would be. Now the whole celebration turned into a discussion of Jaydens health.....again not how we wanted the day to go......I will post about the good stuff that did go on today next.
I am uploading the video and you will be able to see what he was doing with his hands and he was going to cry but started to react this way instead. If it ever uploads...it's taking forever.

:sad5: Poor little guy! Will you take what footage you have to the doctor or therapist?

Please don't think I'm trying to be a doc, I'm only going by what I have read about seizures, since Allie had her awful seizure in June.

Did the cake have candles on it? B/c Allie's neuro told us that bright flashing lights can sometimes cause a seizure. How did Jayden act after it was over? Was he his regular self, or was he really tired? There is a stage after a seizure called "post-ictal" which I learned about. It means that the person is really exhausted and rests after the seizure. Allie passed out for about an hour after her seizure, but hers was a grand mal and lastes for about 1-2 minutes, and she was really in bad shape.

:hug: I know how awful it is to witness this - been there and would not wish it on my worst enemy.

:sad5: Poor little guy! Will you take what footage you have to the doctor or therapist?
I don't know that they would get much out of it...like I said I'm shooting from behind almost and stopped when it got bad ...because I was concerned for him....but you can see him contorting his hand/fingers.

There was one candle on the cake...no lights....Steph and Eden both said it was like he didn't notice the singing because he was so into his cars and then when she turned him he took sharp notice and start to twist his fingers and flutter/roll his eyes...but also you can see at one point he was sucking air to cry and the he turned to me and started the tremoring and I shut off the camera.. After that he just stayed by my dh for a few mins then dh took him outside to see his jumping room and he went in and played. It was a pretty good shake very noticable.

:hug: Debbie, I hope nothing like that happens again. I remember years ago before my Dad died, he would be sitting at the kitchen table and I would see him do this little thing (hard to explain), only lasted a few seconds but it was scary and after it was over it was like he didn't even know he had done it.

What is lousy is not knowing what may have caused it? The singing? The candles? Had Jayden seen lite candles before?

How is Jayden now? :hug:

:hug: Debbie, I hope nothing like that happens again. I remember years ago before my Dad died, he would be sitting at the kitchen table and I would see him do this little thing (hard to explain), only lasted a few seconds but it was scary and after it was over it was like he didn't even know he had done it.

What is lousy is not knowing what may have caused it? The singing? The candles? Had Jayden seen lite candles before?

How is Jayden now? :hug:

He has seen candles before...we really think it's the singing....wait till you hear it it was very monotone....chipper bunch for a b-day party...:sad5: He was crabby for a while but I just talked to Steph about an hour ago and I could hear him jabbering in the background, and he was eating left over turkey:smt036

How scary, Debbie. :sad5: Not exactly how you want to remember his 2nd b-day....so focus on the good things that happened at the party too. :hug:

And I do think you should talk to his Dr or therapist about it, see if they want to view the video too.

I can't imagine how scary that must have been. :sad5: Has he ever done this before?

I can't imagine how scary that must have been. :sad5: Has he ever done this before?
Jayden has had mild tremors when he wakes from a nap...we have mentioned it to the Dr's but they have never been concerned....I always wonder if this is related to the terrible head sweating he does when he sleeps ...he will saturate hie bed easily a radius of 12 inches around his head....only his head...the Dr's say some kids sweat when they sleep....we have also seen him do the eye fluttering before...but the but the tremors with it ...no ...his hands were shaking like a Parkinson's shake. I have watched the video several times now and i am wondering he did seem to immediately turn his hands when he saw the flame??? Jayden has a fallow up with his GI at Childrens on next Wed...maybe they can speed up the Neuro appt

:sad5: I am so sorry. I was going to ask also if he has done anything like that before, too. Also, did he need any 'recovery time' at all? Even a mild seizure requires a recovery period. Did he go clammy? Seem to be in a cold sweat at all? Did he stop as soon as the singing stopped? Did he change colour at all? I know, a lot to think about, but it can help to determine seizure or sensory reaction.

Walker used to 'phase out' during his blue periods which were thought to be vaso vagal responses, but he clearly was turning blue.

Iain does have periods where he 'phases out' during periods of high stimulation or after such times.

Let us know what the Dr. thinks. Keep the happy memories of his birthday party and put that aside in your mind for now as much as you can. :hug:

Debbie, I can't hear the video, I still didn't figure out how to get sound on my new computer. I think it is normal for a child to be crabby after a party anyway, probably just tired.

I hope he sleeps well tonight. :hug:

I am thinking sensory....except for the tremoring.....the eye fluttering and finger twisting may have been him going to a happy place ...so to speak...

[QUOTE][Iain does have periods where he 'phases out' during periods of high stimulation or after such times./QUOTE]

How does Iain act when he phases out? I am really leaning towards that....maybe the tremors was his stressing?? He was looking around brfore it got really bad ...my sister took a pic and he turned and looked her way.

Gosh, how scary.

Hope your little boy is ok now, take care, Zoe

Debbie ... Catherine does the same thing, although she usually has Baby Bear in her hands and wrings it like a string of worry beads! If her hands are empty, she's usually twisting one or both in her mouth. My siggy pic was taken at a b-day party, and her hand is in her mouth. I always make sure Baby Bear is with her, because it's more than just a habitual comfort for her. When I see these cues, I know she's overwhelmed and needs to be removed from the situation, even if it's just relocating to the edge of a room, which is where she normally stands anyway. She spent an entire b-day party yesterday slammed p against me and kneading the stuffing out of Baby Bear, hands sometimes finding their way to her mouth. She didn't say a word to anyone and frequently turned around on my lap when the visual got too much for her. I do have to give her credit though -- she didn't come unglued when the little boy sitting next to her kept trying to gently touch her curls. She kept trying to edge away from him, but she didn't scream or try to hit him to keep him away (although she probably would have if she'd not been sitting on my lap at the time.)

My two cents on the video ... when Jayden turned around, he was looking for someone to rescue him from too much noise and attention. He just looks anxious to me, and it progressed into self-soothing.

Debbie, fwiw my DH has a seizure disorder. He has different seizure types and even the mild one's such as staring spells or eye fluttering or mouth smacking-he needs a recovery period like Leigh described. They zap you out and if it was a true seizure, his being picked up would likely not have brought him out of it.

To be honest, and I know you said that some of the video was cut off, it just looked like he was soothing with hand wringing ect. It is TOTALLY normal for a 2 year old to freak out when the birthday song is sung to them. I've seen sooooooo many kids do that. As a matter of fact, Abby just turned 6, and when she sang to her, Emily cried and buried her head into her blankie. I have no idea what she will do when we actually sing to her next month. Now with Jayden's sensory issues, he probably did the finger wringing and shaking/tensing as his own way of soothing. Though my God son did the same eye thing you describe at his 2nd b-day and wouldn't look anybody in the eye for 10 minutes after, I have it on video. I wish I could convert it from vhs to dvd so that you could see. He is a perfectly average 12 year old now.

Anyway, my two cents is that it wasn't a seizure. I have seen too many with my own eyes from my dh. It was more likely sensory related and even typical 2 year old stuff too.

Just wanted to come back and say I watched the video again to be sure. To me he looks very aware of what is going on around him and is totally anxious about all of the attention. When he turns around his lip is stuck out all pouty and upset like. I totally agree with Lesley. He is anxious and looking for a rescuer. The hand movements, ect are him trying to find his "happy place" like you said.

I think its hard when you have a child with issues, not to immediately jump to worst case scenario. You have to weed out what Jayden already normally displays in times of stress/anxiety and also that he is going to have typical 2 year old behaviors/feelings as well.

How scary. I am off to check out the vidoe right now.

That is scary Debbie. I hope the dr.'s (particularly the neuro b/c it does sound neuro in nature) can shed some light on what caused that. My boys sweat alot in their sleep from time to time and can soak the sheet too but it's not all the time. I don't know if that is related to the seizure like symptoms though. I think Christyn's point about the candle is a good one, also were there lots of flashes, lights from the camera? I have two friends with epilepsy and they cannot be around any kind of flashing/strobe light, although cameras usually aren't a problem.

I hope they can figure this out!

Okay, I can't watch the video at work but I just read the other's comments, do you think maybe it was just anxiety? I think it can be so hard when your child/grandchild has other issues, it's hard to always tell what exactly is going on/what's normal/what's not. I know that when Keegan's reflux was bad I would sometimes not know if his reflux was bothering him or if it was something else.

For Jayden's sake I do hope it was just normal anxiety at the commotion of the birthday song, etc.

Debbie, I wondered about camera flashes and the candles too. Does Jayden have a neuro appointment coming up soon (sorry I can't remember)? I'm praying, though, that Steph is right and it was just overstimulation due to all of the excitement. Poor little guy, and poor mama, and poor gramma. That's just not a second birthday party to remember.:hug:

Debbie, I just got to watch the video again. I had to run earlier and take Ava to Grammy's, but I wanted to see it again just to be sure.

I'm going to agree with sensory, but I still think it needs to be addressed. I wish I could have seen his face. The hands looked like anxiety or kneading, like Lesley said...I couldn't make out the shaking, but that could also be my computer. Steph's face had me worried, though.

Ava goes into these little "trances", but I know they're not seizures. Her little episodes are more like zoning out...you can call her name (loudly and repeatedly), you can tap her shoulder, and like Jayden when he was playing, you just cannot snap her out of it. I think that when he was turned around, it was too much for him.

Please, definitely still talk to the docs though...and mention the tremors after naps. That doesn't sound normal to me. :hug:

Am I the only moron who doesn't know where to see this video? :oops:

Am I the only moron who doesn't know where to see this video? :oops:
Oh Aim:hug: your not a Moron...LOL just lost:hug: sorry to confuse you with my scatter brained posts...LOL:oops: