KC has SID. It was discovered about a month ago. He has it to touch sound and vision. He can't handle anything over a 40 watt bulb(which we has replaced all in the house). And if the tv or noise level gets to loud he screams like he is being murdered. Has anyone experienced this or does it vary from baby to baby. He is still a tippy toe walker and I was told that it should go away by 1 1/2 yr. I know that I could look it up but well lets face it I can't understand that mumbo jumbo. He also stomps his feet all of the time he walks on his tippy toes about 90%of the day which we are getting ready to work on. We are pretty secure with the feeding so now it is time for the physical part of the intervention. Another question I have is do they ever outgrow this or is it something permanent? KC constantly slams his head around like he is having a fit and he does the same thing with his feet. It is almost like he doesn't feel that he is hurting himself. Do anyof you experience this. I am so confused I thought most of the things he was doing was normal but I guess not. Thanks in advance.

I really don't know...what do the therapists say...what does his PED say about it....

now i don't know if its the same but when dylan was small they said he had sensory issues.... he didn't like hands dirty thats not a problem now there were other things as well that he seemed to outgrow

Jason has sensory issues. His are proprioceptive vestibular and tactile.

He is one that thrives on motion and is very particular to different textures. Loud noises set him off also, but that isn't as bad as the other two.

From everything that I've researched, Sensory issues are never "cured", but the children are taught coping skills so that they can function.

Jason has meltdowns about once a day, but once he starts, if I put his pressure vest on, he calms down within 5 minutes.

The speech therapist wants me to try and put the vest on him while feeding him texture foods to see if it will help.

There's a lot of info out there, some of it is understandable. If you get a chance, read The Out of Sync Child. It is full of information although it is "heavy reading"...lots of information but hard to digest and understand the first time around.

Thanks alot Jane. I have a video that KC's OT gave me to watch but I have been so busy lately I haven't had the time. I am hoping to get to it this weekend b/c his sessions are on monday mornings. He has issues to everything but smell(that we are aware of). I will have to look up the Out of sync child tomorrow.

How are the twins doing? I was thinking of you guys the other day and noticed you haven't been on much.

Lauren,
If you haven't got KC in physical therapy already, that's the first thing you need to do to combat the toe walking. They will show you some stretches that you can do to keep his Achlles' tendon stretched out and will also show you some sensory things you can do to promote him bearing weight on his heels. You need to nip this in the butt quickly - it's very hard to get rid of if it's not addressed at an early age when the kids are still easily influenced. The longer he walks that way, the harder it is to correct. Also, definitely look up the "Out of Sync Child." It has great information about SID and if possible, I'd recommend you purchase it as it has info that will be helpful in explaining his behaviors to daycare, babysitters, family, teachers, etc. This is a greatly misunderstood disease. Finally, if the OT isn't already doing it, ask her about the Wilbarger brushing protocol and How Does Your Engine Run. These are some great tools to help kids begin to filter sensory input into their brains and help them make sense calmly while decreasing the screaming, head banging, etc. The other thing you might consider is a Behavioral Interventionist. They are available in Kentucky through the First Steps Early Intervention program and I'm guessing most states offer something similar. Good luck and I hope things start to get better for you soon!

Wow thanks Kelley. That sure is alot to take in I had to read it twice just too make sure I was reading right. The video I have to watch is called Sensory Defensiveness with Patrica Wilbarger,Med,Otr. Anyone ever watch this one? It is about an hour long. KC's OT is going to bring in a PT for help on this. I also need to pick up some different toys to help him out with the touch part. Although it is touch with food and anyother texture the toys are a first step to helping him. Do the Dr's know what causes this problem but is it one of those things that "just happen"? Sorry for all the questions but I am still trying to collect all the info I can. Thanks again.

Lauren,
That's great that the video is a Wilbarger video. It will probably go over the brushing technique with you. I think if you'll find the Out of Sync Child book it will answer a lot of your questions for you. There are also some great websites out for support systems - just google sensory integration disorder. I don't think the docs really know what causes it - it's basically an immaturity in the brain that makes it difficult for these kids to filter out the things we routinely filter out (ie we don't feel the tag on our clothes but SI kids often do and complain about them)

I am going to borders tomorrow to look for these books and any videos I can find on the subject. Thanks so much for all of your help everyone.

Jason has sensory issues. His are proprioceptive vestibular and tactile.

He is one that thrives on motion and is very particular to different textures. Loud noises set him off also, but that isn't as bad as the other two.

From everything that I've researched, Sensory issues are never "cured", but the children are taught coping skills so that they can function.

Jason has meltdowns about once a day, but once he starts, if I put his pressure vest on, he calms down within 5 minutes.

The speech therapist wants me to try and put the vest on him while feeding him texture foods to see if it will help.

There's a lot of info out there, some of it is understandable. If you get a chance, read The Out of Sync Child. It is full of information although it is "heavy reading"...lots of information but hard to digest and understand the first time around.


Curran had sensory issues and still does to an extent. However, with exposure he is learning to cope with them. We muddled about to help him on our own.

Iain on the other hand definately has more issues. While we do not share the tippy toe walking, Iain does scream like he is being pulled limb from limb with loud noises, covers his ears often, has problems with some clothing (we are still identifying triggers), and many more triggers he is being screened for. Definately a challenge to deal with.

I agree completely with Jane that they never outgrow them, but do learn to cope. The sooner you can start helping him with coping mechanisms and start exposure to desensitize him the better. We are awaiting a report from our OT in the next couple of weeks and hopefully will begin to tailor some home therapy for Iain.

The Out Of Sync Child is a fantastic book. I have found it to be a remarkable source. However, it is also best you have him screened to help you identify his needs. I thought Iain was sensory seeking and turns out the OT says he is defensive. I am currently reading the book again. :)

:hug: The more you learn the better YOU can cope as well.

I had also read somewhere (I can't remember all the sites/books I've read!) that routines are also important for those with sensory issues. I've noticed with Jason that if we keep to some sort of a routine, he usually does fine...when my dh is out of town due to business, Jason flips out in the pm.

He's also a bit out of sorts because his regular OT is on maternity leave...she won't be back for 10 weeks. The sub OT can only come once a week (instead of 2x week) and she doesn't have the personality that the other one had. I can see the difference it has on Jason...which makes me have to work harder with him during the day myself.

Sensory issues are a challenge...Our ST said that Jason's feeding/texture issues is not that bad, but that I was smart to get him involved in therapy early as it could have gotten really bad.

It's the meltdowns that I can't handle!!! (which reminds me I need to call my doc for some tranquilizers for myself during his meltdowns):hairpull:

Oh, can I relate to the meltdowns! Epic proportions. :hairpull:

It is true that some of these kids thrive on routine. Curran sure does and Iain even moreso. If we change things for Iain the train derails completely. I have seen him change from a good day to an awful one with a change in a teacher, therapist, routine, etc. It can last for hours or for a full day with him.

Here Jane-------->:562: Just for you! Save the prescription. :smt036