and hmmmm, just what we needed...another diagnosis!:hissyfit: They've now decided that Ava has a sensory integration disorder.

The OT who did our eval was about 5 mos prego and in that kinda "DUH" phase of pregnancy when you can barely form a sentence...does everyone remember that, b/c I def do! :rolling:

Until we can get the schedule coordinated, she gave us some exercises to do at home. We're going to try to schedule it so FT and OT will be back to back, so we don't have to spend ALL of our free time in therapy...just most of it!:evil4:

The GREAT news is this...the OT thinks that Ava's balance issues and her low tone and very awkward gait are directly related to her senses and the way she processes things...definitely NOT neuro!!!:yahoo: I could have just hugged her for saying that!

So, here's the deal: We're supposed to start a "sensory diet" (there's a gooogler for ya!) of brushing every 2 hours, sitting on the ball and rolling her off to the sides to get her (sort of) comfortable in other planes, joint compressions, deep pressure touch, and helping her get used to other textures. The OT noticed that Ava is very vertical...she won't even bend down to get a toy, she bends at the knees and stays very, very straight. She thinks that if we can get her used to other types of movement (on the ball, swings, etc) that we can help her balance improve, and we may start some PT as well.

She said we'll work on the dressing/self-care kinda skills later on, and I agree that this stuff is much more important. We're going to try to really link it in w/ the FT also, so we can kinda do a double whammy in both areas.

So, a good appt overall!!!!

Sounds like a good appt...and a good plan! :)

I'm glad you've found some answers AND a plan to work with. I hope it helps!!

Good Linds... great appt. :yahoo: Even if the OT was duh... :evil4:

Sounds really encouraging Lindsay!!! How has she been doing with feedings/eating?

that good at least the ot is on the ball and putting some sort of plan in action

Sounds like a good appt and a good plan Linds!

I am sorry she has another 'label', but the important thing is that she is getting help for it early. I am sure you will start to see results really soon. It makes sense that she would not want to bend, becasue of the reflux. I am sure she learned that it feels a lot better to keep herself as upright as possible.

great appt. :smt041

That sounds great! Even though it's another diagnosis, at least you now have a plan of action! :smt041

good luck . atleast you know now . :) the therapy will benefit her im sure :)

Linds, I am glad to hear the appointment went well. If that's the case - with therapy she'll improve in many areas in no time. That's really good news!!!! Main thing, it made you feel better too!

It makes sense that she would not want to bend, becasue of the reflux. I am sure she learned that it feels a lot better to keep herself as upright as possible.

That is what I was thinking. GERD sucks!

I hope therapy goes well!:sad5:

I bet even though it was not necessarily what you wanted to hear it was nice to here a new theory on what might be cuasing some of Ava's issues. I hope it really helps things and is a key to some of Ava's struggles! It would explain why the GI's have been unsuccessful in finding the cause of her feeding issues if SID is coming into the mix too.

The OT who did our eval was about 5 mos prego and in that kinda "DUH" phase of pregnancy when you can barely form a sentence...does everyone remember that, b/c I def do!


LOL. Do you know if that resurfaces at 5 mos. postpartum? And 10 mos.? And 13 mos.? B/c I feel like that pretty often some days! LOL Maybe it just never really goes away until they leave the house. LOL

ROFL, Steph! Um, it's still resurfacing w/ me, and Ava will be 2 in May!

Sounds like a great appointment. Even though it stinks to have yet another thing to worry about, at least you have a plan of action.