View Full Version : Laryngomalacia


JennF
02-20-2007, 08:38 PM
Does anyone else's babies have this condition? Karl has it, and it scares the heck out of me...his breathing sounds terrible, he breaths faster than normal and he has to use extra muscles to breath. I read that it can sometimes contribute to reflux, since the baby is using extra pressure to pull air in, it weakens the sphincter, and up comes the goodies!
I'm wondering at what age this will disappear?

Moonbmr72
02-20-2007, 09:43 PM
Payton has it.

His was just awful for about a year. We didn't need to use a baby monitor for the first 8+ months of his life b/c we could hear him breathing downstairs.

He's just now 17 months, and you can still hear traces of it. If I remember correctly, it really began to diminish after 9 to 10 months. We just had his ENT follow it. I think our last appointment with him was when he was about 14 months old.

Have you seen an ENT yet?

Amy
02-21-2007, 12:09 AM
miki has it also she has had surgery to fix it once already aas her was really bad and caused apnea and swallowing issues, the surgery was a succes but she still may need to go in for more if things dont improve but we are hopeful that she will improve on her own, most children do grow out of it and dont need any surgery but if it is causeing problems other than moisy breathiong then they may requiere surgery

Vicky
02-21-2007, 12:22 AM
My son had laryngomalacia. Very severe. He had surgery at 4 1/2 months to help it and it is gone. Usually docs say to just wait it out but for Max he has multiple issues and our ENT said that with kids like him it would take a lot longer to outgrow.

Please see ENT if you haven't already. They can give you more info on your options.

Amy
02-21-2007, 12:29 AM
Vicky was actualy incouraged me to take miki to an ENT and im so glad she did

steveangela1
02-21-2007, 07:07 AM
Carson has both laryngomalacia and traheomalacia. Being a respiratory therapist this baby scared the poop out of me on a daily basis, he would even turn blue on me at times. The worse of it was over when he was about 5 months old we could barly hear it then and now at 17 monhts he gets sqeeky when he over exerts himself or has a cold.
I would make sure that an ENT is following up with your baby and that the reflux is under control at all times. The ent should do a scope to see if surgery is an option. YOu should also consider an apnea monitor for your sanity and the doc can see if there are prolonged episodes of apnea.
Some things they told us to do with carson were: xopenex treatments as needed, put him on singular, pulmicort (this was to keep his work of breathing at an absoulte minimum) they also had us keep him out of the public areas and daycare to limit exposure to bugs which could cause him a lot of trouble. (he still ended up with numerous incidents of croup, rsv, bronchiolitis, pnemonia....) if the work of breathing is severe not only would I see an ENT I would see a pulmonologist. THe ent called a lung specialist for carson just because of the tracheomalacia after doing a bronchoscopy and seeing how severe carsons airway was.
It does get better! Its so hard to see your child breathe like that!! I stayed a nervous wreck all the time until his worst part was over.

Sam
02-21-2007, 08:58 PM
my dd has it too! ent at sick kids has seen her three times now since birth and they say she will outgrow it- our next follow up appt is at 1 yr. good luck.