i just wanted to understand more

Here's a brief explanation:

Sandifer's syndrome is the association of gastro-oesophageal reflux disease with spastic torticollis and dystonic body movements. Nodding and rotation of the head, neck extension, gurgling sounds, writhing movements of the limbs, and severe hypotonia have been reported.2-4 (http://jnnp.bmj.com/cgi/content/full/66/6/805#B2) It is hypothesised that such positionings provide relief from discomfort caused by acid reflux.2 (http://jnnp.bmj.com/cgi/content/full/66/6/805#B2) A causal relation between gastro-oesophageal reflux disease and the neurological manifestations of Sandifer's syndrome is supported by the resolution of the manifestations on successful treatment of gastro-oesophageal reflux disease.2-7 (http://jnnp.bmj.com/cgi/content/full/66/6/805#B2) The clinical manifestations almost invariably arouse the suspicion of neurological disease and lead to unnecessary investigative procedures.4 (http://jnnp.bmj.com/cgi/content/full/66/6/805#B4) The intermittent occurrence of torticollis with alternating directions, normal sternocleidomastoid muscles, and normal cervical radiographic findings make Sandifer's syndrome a probable diagnosis and necessitate upper gastrointestinal studies.6 (http://jnnp.bmj.com/cgi/content/full/66/6/805#B6)

My youngest has Sandifer's and it is scary to see him exhibit these things before we knew what it was.

i was curious nothing scarey has happened with Alexis she does nod alot sometimes like she is saying yes and sometimes she is saying no.. i thought when she nodded yes that she was bobbing to music the first time i saw it... she also straightens her legs sometimes and i can't bend them... always has a part of her body moving arms legs head something