My 8 1/2 month old, Naomi has been finally diagnosed with a redundant loop in her bowel which causes significant problems with constipation and reflux. Her distended colon pushes her stomach into a transverse position which alters its ability to empty sufficiently, thus her constant reflux. She is on the 10th percentile for her weight and 50th for length. Is there anyone else who has DGE due to transit issues or bowel redundancy, causing reflux, and what did you do to remidy this issue. Naomi is on Losec,a high dose of Alactilax (a laxative), and erythromycin for gut motility. She has just undergone a rectal biopsy to exclude hirschbrungs disease, which came back normal. A colonic study is booked for Jan. I am worried this problem is never going to go away and she will not be able to eat without refluxing or vommitting ever. Would some answers.

Are they considering surgery, or do they think it will repair itself?

I have heard many times that DGE will aggravate reflux. I never wondered why someone has DGE though, just that they did have it.

I know also when Shae-Lynne is constipated her reflux is horrible until she goes.

Sorry, I don't have any answers. I hope someone else will be able to help.

Best wishes
Jean

My 8 1/2 month old, Naomi has been finally diagnosed with a redundant loop in her bowel which causes significant problems with constipation and reflux. Her distended colon pushes her stomach into a transverse position which alters its ability to empty sufficiently, thus her constant reflux. She is on the 10th percentile for her weight and 50th for length. Is there anyone else who has DGE due to transit issues or bowel redundancy, causing reflux, and what did you do to remidy this issue. Naomi is on Losec,a high dose of Alactilax (a laxative), and erythromycin for gut motility. She has just undergone a rectal biopsy to exclude hirschbrungs disease, which came back normal. A colonic study is booked for Jan. I am worried this problem is never going to go away and she will not be able to eat without refluxing or vommitting ever. Would some answers.


Wow. I do not know of anyone here offhand who has a child with this. I can see your problem and why you have such problems with reflux! What did the GI say about it? That is not something that can correct itself to my knowledge, rather something they live with or needs surgical repair, correct? Is there not a danger of the intestines going nephrotic or such due to decreased blood flow if they are collapsing on each other?

Truthfully, I do think it would be a lifelong problem if it can not be corrected surgically. Take what I say with a grain of salt as I will be the first to tell you again, I do not know and that this is just a guess based on what I do know. I hope someone more knowledgeable will be able to come on and tell you otherwise and guide you on our boards.

Regardless, whatever your testing results or whatever we will be here to support you with the reflux and to help understand your child's condition.:hug:

I thought that there would be heaps of kids here with this issue, but I guess I was wrong! Naomi's condition isn't common, but it is definately something that interferes with her eating and refluxing and emptying. It causes significant delay in her number 2 area and thus this all banks up and makes her reflux and vomit. She has seen a surgeon who I think wants to remove the redundant section as a last resort, but at the moment we are using a very large dose of laxatives (i don't know if thats good...). I think getting rid of it could be the answer, but i'm no doctor..:banghead:

I thought that there would be heaps of kids here with this issue, but I guess I was wrong! Naomi's condition isn't common, but it is definately something that interferes with her eating and refluxing and emptying. It causes significant delay in her number 2 area and thus this all banks up and makes her reflux and vomit. She has seen a surgeon who I think wants to remove the redundant section as a last resort, but at the moment we are using a very large dose of laxatives (i don't know if thats good...). I think getting rid of it could be the answer, but i'm no doctor..:banghead:

Understood. :( I would give it a few days yet as people are not on all the time and give them time to respond. IRD is very unique for message boards as we are just so darn busy and have so many members on at any given time. That does not mean that everyone will see your thread and respond, as some go only to select forums of interest. So having said that, I think I am going to move your thread to DGE as I think it really does belong there more than in medications. We have many people with DGE to respond to you there.

I know all about using large vats of laxatives and the concerns with that as I have been there and done that with my middle son. It was NOT fun at all and it scared me how much we poured into him. Turns out we had an idiot doctor, not a concern such as you are facing.

How did they diagnose the condition, by the way?

hopefully I don't have a dud doctor either!

My pead. sent her for a barium enema which picked up the redundant loop. (meaning, extra and not functioning). the problem is if you let her remain constipated it can cause more redundant loops.Go figure! I tell you, I just want this over, but I think its a long road ahead.

I think you are not likely in the same situation as we were with our "GI" as they turned out to be just a pediatrician with an "interest" in gastroenterology. :banghead: We wasted 15 months with that nutbar. At least we have a good one now. And at least you have found a problem early on so that speaks volumes for you and any prognosis I am sure.:-)

Again, I am not an afficianado with this problem, but I can do some research on it. From the little I do know and recall, it is long term. :( Sorry, but again that is only what I recall from coming accross it in the past and I do not know of anyone who has this currently. That is not to say that someone does not have it here, they may well and will chime in if they see this thread.

Again, I encourage you to find out what they feel is prognosis from the GI if at all possible. I know that is sometimes like pulling teeth from a chicken.:favorites21:

thanks, I don't know why, but Naomi still hasn't seen a GI doctor, only when in hospital for a small stint and she just dismissed it as "all babies vomit" this was before the bowel issues were found. I think that seeing a GI would be good, but I think that my Pead. thought it was a surgical issue. Even though I have a great surgeon, i feel as though no one listens and this could take years to get to the bottom of.

Now that I do not get at all. I would think they would have you in to see a GI surgeon in a flash. Anything that can restrict bloodflow to the intestines is scary and needs to be addressed. Maybe I am wrong here, but I am banking that I am right. Can you tell them simply you demand a referral? I would as you will not be likely to get your answers unless you see a GI. I do know also that bowel surgery is avoided as much as possible as it is very difficult to repair and if sectons need to be resected then it can be very tricky depending on the areas involved. IT could be that the area where the loop is is too difficult to be a surgical option, but they should explain that to you. Really, I am a bit appalled here.:hug:

As far as the all babies vomit goes, I can say I fully understand as I had a 3 year old puking all over the place with apparent "colic". Imagine!

what were his problems? Naomi doesnt vomit as much as she used too since all the meds and as long as we keep her bowel moving, but always refluxes as her stomach gets pushed up into a transverse position when food/milk enters her intestine...a viscous cycle really.

My guy has suffered over three years of horrid liquid poops with reflux as well. His immune system was very chronically suppressed and he was sick all the time. Mind you, he puked from birth until he was over 3 years old and now he is silent reflux. He still pukes from time to time though, today for instance when we went shopping. I was so on the ball I caught it in my hand much to the chagrin of some onlookers and managed to get it cleaned up and in a garbage can pretty fast. lol

Curran's problems seem to be narrowed to food allergies and intolerances. He is testing for fructose, sucrose, and lactose intolerances early January. In addition, he has a peanut, treenut, and milk allergy. It wipes out a lot of foodstuffs. Since we have done so much in terms of changing and tweeking his very bland diet, he is so much better right now. Any time we add in a new food... WHAM! Right back to square one.

Curran has a chronically high SED rate and an elevated IgE. His colonoscopy was incomplete, but our GI says she is not going to repeat it right now and will see how our testing and referral to our GI dieticiain goes in January.

You do have a vicious cycle! Egad! Poor kiddo. I imagine that is quite painful for her. Is there any position she is more comfortable in at all? Did they give you ANY tips?!

Poor baby.

suprisingly enough she doesn't complain much, she has always been very relaxed, don't know why.