View Full Version : Outgrowing DGE


Michelle
11-24-2006, 09:47 PM
All that you hear from the ped. is that they will outgrow the reflux. What I was wondering is do babies outgrow DGE. I think that my baby may have the DGE as well as the reflux.

Michelle

Leigh
11-25-2006, 12:23 AM
I would imagine it would depend on what was causing the motility issues to begin with. There must be people who do outgrow it as the medications can be trialed and re-addressed from time to time and often I hear of it running a course of 6 months before attempting a wean from the meds, similar to how they usually attempt to wean from reflux meds in a lot of cases. I know our ped and one GI has said that in time as Iain matures he *may* outgrow his DGE. To tell you the truth, I have not really thought about it much as he is not treated for DGE at all, yet we have had him diagnosed with it and see evidence of it in him.

What makes you suspect DGE, by the way?

Michelle
11-25-2006, 06:44 AM
I would imagine it would depend on what was causing the motility issues to begin with. There must be people who do outgrow it as the medications can be trialed and re-addressed from time to time and often I hear of it running a course of 6 months before attempting a wean from the meds, similar to how they usually attempt to wean from reflux meds in a lot of cases. I know our ped and one GI has said that in time as Iain matures he *may* outgrow his DGE. To tell you the truth, I have not really thought about it much as he is not treated for DGE at all, yet we have had him diagnosed with it and see evidence of it in him.

What makes you suspect DGE, by the way?
Well, I am breastfeeding and she has just recently became interested in solids. She will be 8 months in a week. I always thought that the breast milk digested quicker. She was perfectly content to nurse only until just recently. My boys both started cereal at 4 months and wanted it three times a day. She does not nurse very long either. She will go several days without pooping sometimes even eating baby food as well as nursing. I do think that she might have some food allergies. Possibly MSPI and egg. The ped will not give ear to it when I start talking allergies. It frustrates me. I'm just having a hard time figuring it all out. We have been on Prevacid for five weeks (15mg) a day and I still haven't noticed that much difference in her reflux. She did suffer for five months with no meds so it may take a while for the Prevacid to work. And to complicate things more she is battling ear infections. When the doctor finally gave me the Prevacid she did prescribe the Regalan but I have been afraid to give it to her. There have been times that her poop has had streaks of blood in it and she has also had the snoty poo. Hope I haven't rambled too much. Thanks for taking the time to ask.
Michelle

scarlet
11-26-2006, 04:56 AM
Michelle it sounds to me like there are a lot of problems that your little one could be facing, is it possible to get a referral to a Ped GI, as I don't think a normal ped will be able to handle this case properly. IF you are seeing a GI, then I think it is time to find one who actually wants to try and sort everything out for you guys.

I do think children generally grow out of the DGE too, or at least adjust to it. DGE becomes a problem with reflux as the food is there longer for them to reflux on. So if the reflux is gone, then the food taking a little longer to digest isn't that bad.

nikkib
11-26-2006, 10:19 PM
My little one has DGE also, but I am not sure if they outgrow this or not... Naomi is on Erythromycin and that has helped her a little(she would still vomit and reflux 3 hours after a breastfeed and not do a bowel motion for 10-12 days, so maybe that might be worth trying if you speak to your pead. It could also relate to bowel problems. I think it is all related....but thats just me.

Leigh
11-26-2006, 10:29 PM
Well, I am breastfeeding and she has just recently became interested in solids. She will be 8 months in a week. I always thought that the breast milk digested quicker. She was perfectly content to nurse only until just recently. My boys both started cereal at 4 months and wanted it three times a day. She does not nurse very long either. She will go several days without pooping sometimes even eating baby food as well as nursing. I do think that she might have some food allergies. Possibly MSPI and egg. The ped will not give ear to it when I start talking allergies. It frustrates me. I'm just having a hard time figuring it all out. We have been on Prevacid for five weeks (15mg) a day and I still haven't noticed that much difference in her reflux. She did suffer for five months with no meds so it may take a while for the Prevacid to work. And to complicate things more she is battling ear infections. When the doctor finally gave me the Prevacid she did prescribe the Regalan but I have been afraid to give it to her. There have been times that her poop has had streaks of blood in it and she has also had the snoty poo. Hope I haven't rambled too much. Thanks for taking the time to ask.
Michelle

If you are having feeding issues at 8 months I am going to tell you right now to get to a feeding skills team. Do not mess around waiting as any delay you have could take much longer than you would ever imagine to correct if her intake is poor and she is not progressing with solids nicely by this time.

The fact that she goes several days without pooping is a red flag for sure. SHe is likely very constipated, but if she is not intaking well then there would be problems, too. HOw is her weight? You have to have input to have output, KWIM?

Peds do not like to talk about MSPI or allergies for babies at all. It is so very hard to diagnose and testing is notoriously inaccurate at this age. Trial and error via elimination diet is the key to learning what she may be reacting to so I suggest keeping a log of her foods, the amounts and when she poops. that way you can haul it off to the ped wth you and have cold hard facts to show. It may make a difference. Although I do agree with Rachel I think you likely need a GI based on what you are describing.

The blood streaked poop is a problem, too. Is it streaked throughout or just at the end? And is it soft or like balls when it comes out?

The "snotty" poop shows irritation as that is mucous and can be a sign of allergies, reaction to meds, or just that she has constipation or something like a bacterial imbalance or virus brewing. It is so hard to say. You have to keep track of it to see if there are any patterns.

And again I agree, it is all related. Often you have to get rid of each layer of problems to find out what really lies beneath and that takes time. If you are proactive you will get your answers much faster as many peds take a wait and see approach. :sad3:

AmyHaddenJadelynn
11-27-2006, 12:01 AM
:censored: I would find a ped that would listen to you ant tell this one to shove it!!!!! If I were you and that were my baby suffering this whole time you better believe I would have been making a scene by now.:violent1::smt075

AllieandJacksProudMama
11-27-2006, 09:16 AM
Per Allie's GI doc (the head of Children's Hospital in Detroit who I think is fabulous) - DGE is brought on by a virus that a kiddo gets. It usually resolves itself within approximately 12 weeks. However, there are cases that do not resolve at that pace, and he said those cases are called "ideopathic" meaning that they do not understand or have a reason for why the DGE doesn't get better.

In Allie's case, she had severe DGE at 6 months and needed Reglan (which I hated giving). We tried to go for a repeat emptying scan but she wouldn't cooperate. We took her off the Reglan for the scan and she has been off ever since. Her intake of liquid is much better now than it was, but still no solids. I suspect she still has DGE, but that it is slowly resolving.

Allie's doc also said that sometimes the pyloric valve (the opening from the stomach to the small intestine) can be narrowed, and that by doing a baloon dilation procedure (inflating a baloon and therefore enlarging the valve) sometimes this can help. We may ask for this at our next GI appointment in Jan. Allie will probably be rescoped and then if the opening is small, they will do the procedure.

Hope this helps.

Christyn

munkeesmama
11-28-2006, 06:40 PM
I really don't have any advice. Emma has pretty severe dge. Her g.i. said that she probably won't outrow it since it seems to be getting worse not better. She mentioned the pyloric dilation but said that she has seen too many kids getting dumping syndrome or Bile reflux from it so she doesn't want to go that route. So no, help but will be stalking this thread to see other's ideas.

Jen S
11-28-2006, 10:00 PM
We just got diagnosed with DGE. We are not putting Max on meds at this time as our first trial was a horror story. When I asked if he would outgrow it, I was told he may never outgrow it and there are adults who still take medicine for it.

So, I guess it is just a wait and see for all.

This is what we were told.