KC is headed to Riley's on friday for a liquid phase empting study. Well I know most of you have had these kind of tests done. What do they do with this test? I know alot of these test are done while asleep. But is this one they do awake or asleep? I just need to knowe what I am going to expect because I am always so frightened when he goes. I start getting scared the whole week before we leave. I hate the fact that they have to use my poor son as a pin cussion. Or even a guinea pig. Do any of you feel like that with each test or is it just me? I know this is what is best but I wish they had different tests methods without outting him to sleep or torturing him. I know that I am over reacting but I can't help it. I also second guess myself all of the time with his care and wonder if I am doing the right thing for him. If I didn't have my mil's voice in my head saying that I am a bad mom and not doing the right thing I guess I would be alittle better but I'm not. She thinks this is a mistake and has told me so.

(((HUGS))) Lauren! That must be so hard to go through...we've been fortunate to avoid tests, but the ER and IV was bad enough for me!

Tell your MIL to shove off! (I'd like to say worse, but we're not in R Rated so I'll behave, lol) I'm sure that her kids were the picture of health so she never had to deal with the things you have. Walk in my shoes for a day, sweetie...that's what I'd have to say to hear!

The empitying test is no biggy at all compared to a lot of them. He will have to be hungry for the test and they will give him barium or his milk laced with something that shows up on a fluroscope. Basically they will watch him drink it and take several pictures of him at different intervals and see how long it takes his stomach to empty. That's it. No poking and prodding. Good luck! Try not to worry about this one hon. Hugs! Oh, and IGNORE you MIL, you know your kiddo best.

We've never had this test done, but it is hard to watch your child go through all of this. I think many of us second-guess ourselves and I think it's largely because of the overriding message we get (outside of IRD) that reflux really isn't that big of a deal. :-(

I think you are doing the right thing for KC--remember, he has doctors who are just as concerned and they wouldn't be running tests on him if they didn't feel they were warranted. If this were truly all in your head, KC's docs wouldn't be so concerned. Feed that to your MIL the next time she spouts off.

I'm sending you {{{big hugs}}}! Please let us know how it goes.

It is fairly non-envasive like Melissa said. Sam slept thru the entire test. Ignore your MIL, this is your child and you know what is best. If she can not be supportive, tell her to take a hike!

I have not had that test, but I know how you feel. If you decide to do a test you worry that you are overreacting and putting them through unnecessary trauma. If you choose not to do a test you worry that you will miss something big. It is not easy when you are the mom and it is all up to you.

You just have to go with you gut and do what you think is best for KC. Try not to listen to your mil or anyone else that will make you feel bad. You have enough of your plate you don’t need to deal with unsupportive people.

Good luck with the test. I hope all goes well and you will get some answers so you know where to go next.

Maiya is an extremely difficult child and she hollers at all her appointments. I felt exactly like you , second guessing and feeling guilty , as my hubby did not agree to all this. Anyhow, Maiya never ever laid on her back, not even for diaper changes- it was impossible


The test was just drinking milk and then she had to lie there for 1 hour. OH my god- she never tolerated 1 min. She cried when they strapped her, but i had brought a sesame street tape. We sang and danced and monkeyed around her for the longest hour of my life. She giggled and did really fine.


Bring tapes, DVDs, etc. They might just have a tv for you- it was my saving grace and my hubby was very thankful that i had brought it. Maiya's arms were strapped , but her hands were free. The toys i had brought were useless , but the movies worked great


Maiya has not responded to meds, and i always wonder if there was something else. I am glad we did the tests- i know she has no anatomical or DGE issues. You will feel the same in time, i promise


good luck and let me know how it went

Kara has this test done a few months back and it wasn't bad at all. The technicians had her lay down on the video fluoroscope table and put a couple of strips of wide tape loosely over her so she couldn't move around too much. They propped her up a little bit with a small pillow b/c of her reflux - they told us that if she puked, they would have to do the test again another day as the results would be inconclusive.

Then they gave her a few ounces of a barium solution with some radioactive particles in it (through her g-tube - she is 100% tube fed) and we had to wait about an hour for the machine to measure how fast her stomach emptied. They were also able to see if she was refluxing, although the test was really to look for DGE. They had a TV w/ baby Einstein and other kid videos and we brought plenty of toys, but Kara wound up falling asleep for most of the test and we just sat on either side of her staring at her while she slept :wink: .
Good luck and let us know how it goes!

Ugh!!! It makes me so mad when people try to tell you that you are wrong when they have no real idea what it is to live with this!!! Sorry you have to go through this. My oldest had an emptying scan, it was a piece of cake! :donut: He drank the bottle, they scanned his tummy, and it was done....no biggie. Good luck...I hope that you MIL puts a sock in it!!:angryfir:

Lauren, I agree with Amanda 100% that is exactly what I was thinking, KC is your child, tell MIL to take hike!!!

Good luck with the test, let us know how you make out.

Best wishes

Hey ladies. We will be leaving in the morning for KC's study tomorrow. I don't know when I will be back in Latest should be mid evening. I hope when I get in Not only will I have some good news but I hope to read alot of good things from everyone else.

Just wondering how it went today? Hope it worked out for you guys.

Wishing nothing but well for KC and you during his test!! Let us know how things went when you get back tonight!

Hey ladies I am home now. I thought I was going to have a panic attack:sob: . When I saw they had to tape him down to the bed I cried :crybaby: . Then when that machine came down on top of him I thought I was going to pass out. I am so very claustrophobic it is pathetic. KC on the other hand cried for about a minute and then turned to watch Barney. He is such a little trooper. He did better then I did and it wasn't me having the test. We won't know anything till monday or tuesday. That is when they will schedual the ph probe and then we will go from there. Right now I am so very tired. My day started at 5am and it is along way til bed time. I am sure I will be asleep very early for me. KC is so happy to be home he can now crawl on the floor and work on his walking. I hope we never have to have that test done again because I don't think I can handle it again.:sad5: . I am so glad to be home and out of the car. It is a very long trip for all concerned. So there is my update I will let everyone know when I get the results.

Thanks for the update, hope you get great results back. Get some rest and I am sure tomorrow will be a better day.

Isn't it funny how the little ones handle things better than us? I guess b/c they really don't know what is involved. LOL

Hugs to KC