She'll be having an abdominal ultrasound and (another) gastrograffin enema. Pending the findings from these, we have a meeting with the surgical team set up for Moday the 25th, and (even though I'm still constantly going back and forth in my head) I am fairly certain that we're going to go ahead with the fundo.

Her sweat-chloride test was negative for CF (which I already knew it would be, that was the least of what was worrying me), so that was a positive note to end the afternoon.

She's finally asleep now, today has been a truly awful day for her. She napped for less than 40 min today, after being up all night last night, and I've been well, let's just say, a heck of a lot less than "pleasant" to be around. I wouldn't be surprised if my poor dh leaves me, I've really been taking it all out on him, even though I know I shouldn't be. I just can't help it, I have honestly reached my breaking point. I am vowing to make a concious effort to be extra nice to him tomorrow, so someone please hold me to that, k?

Anyway, I'm gonna try to go get some sleep...she was so bad when I laid her down, even after a big dose of mylanta, that I know tonight is going to be hellacious, and we've gotta be at the hospital (45 min away) at 8:00 am. I just love rush hour traffic over the Skyway!

Wish us luck guys, we need all we can get! I'll update as soon as we get home! http://smileys.smileycentral.com/cat/12_3_45.gif (http://www.smileycentral.com/?partner=ZSzeb001_ZNxdm834XXUS)





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Good Luck Lindsay...I hope everything turns out for the best...Big Hugs to you and Miss Ava:)

*Make sure your extra sweet to hubby tomorrow*

Prayers going your away...poor little Ava. Hope that something shows up with the test...I know that it's always better to finally find out what is wrong than not find out and keep worrying.

Big hugs and try to get a little sleep while you can.

Hugs and prayers, poor Ava. Yes, be nice to dh also, Ava needs the both of you. Let us know...

Hey- be nice to DH, that is what you made me do last week, so I am throwing back your advice your way. Dh knows you dont mean it, it is just an impossible situation.

I send you a big hug, and lots of prayers. I think of you every day. I am still holding you to a marguerita on the beach.


Please update ASAP


jojo

Forgive me but what is a sweat chloride test for?

Cystic Fibrosis

I am hoping and praying that the tests go well and give you good answers, Lindsay! *fingers and toes crossed too*


This weekend, try to get your Mom to watch Ava so you and dh can get out for a bit...walk on the beach, have a Marg, anything...just take a breath together.

Good luck Lindsay, I hope the testing gets you some answers.

Good luck. You and Ava and you poor abused dh will be in my prayers. I hope all goes well tomorrow. Get some sleep while you can.

Oh man! I just read your other thread too. My heart is aching for you and little Ava! (And your poor hubby too!)

I'll be thinking of you.

Hope the appointment with the surgical team goes well. I know when I was faced with that decision, it was the toughest thing I ever had to do in my life, but once the decision was made, there was no going back. I was actually relieved to see the day of surgery come. I knew it would mean no more vomiting, no more screaming, no more sleepless nights. I also knew that there could be other issues with the fundo, but the benefits (for us) far outweighed the risks.

What a nasty hand of cards to be dealt. I'm still trying to figure out the lesson is all of this.

Let me know if you have any questions. We have had a very positive experience and if I can help you in even some small way, I would be more than happy to do it.