We think our boys have DGE. They fill up way too fast, don't act hungry for hours, etc. Their endoscopies showed that the hole to their intestines is small. We are really trying to push them to do a study. In the meantime, what are some tips on feeding? How long do you space it out?

I found this online.

Medication
Several drugs are used to treat gastroparesis. Your doctor may try different drugs or combinations of drugs to find the most effective treatment.

Metoclopramide (Reglan). This drug stimulates stomach muscle contractions to help empty food. It also helps reduce nausea and vomiting. Metoclopramide is taken 20 to 30 minutes before meals and at bedtime. Side effects of this drug are fatigue, sleepiness, and sometimes depression, anxiety, and problems with physical movement.
Erythromycin. This antibiotic also improves stomach emptying. It works by increasing the contractions that move food through the stomach. Side effects are nausea, vomiting, and abdominal cramps.
Domperidone. The Food and Drug Administration is reviewing domperidone, which has been used elsewhere in the world to treat gastroparesis. It is a promotility agent like metoclopramide. Domperidone also helps with nausea.
Other medications. Other medications may be used to treat symptoms and problems related to gastroparesis. For example, an antiemetic can help with nausea and vomiting. Antibiotics will clear up a bacterial infection. If you have a bezoar, the doctor may use an endoscope to inject medication that will dissolve it.Meal and Food Changes
Changing your eating habits can help control gastroparesis. Your doctor or dietitian will give you specific instructions, but you may be asked to eat six small meals a day instead of three large ones. If less food enters the stomach each time you eat, it may not become overly full. Or the doctor or dietitian may suggest that you try several liquid meals a day until your blood glucose levels are stable and the gastroparesis is corrected. Liquid meals provide all the nutrients found in solid foods, but can pass through the stomach more easily and quickly.
The doctor may also recommend that you avoid high-fat and high-fiber foods. Fat naturally slows digestion—a problem you do not need if you have gastroparesis—and fiber is difficult to digest. Some high-fiber foods like oranges and broccoli contain material that cannot be digested. Avoid these foods because the indigestible part will remain in the stomach too long and possibly form bezoars.

Thanks, Eliana!

Here is an IRD link to DGE as well:


http://www.infantrefluxdisease.com/gastroparesis.php


My youngest son has DGE and has never been on meds for it. I know from our milk test that a "normal" stomach empties out at 50-70 % within one hour. Iain was at 24 %. There are kiddos who have it a lot worse. :(

Iain still will skip a meal or sometimes two when he has a big meal. At his worst, he would not touch food at all for at least one or two meals after even a little snack. It was awful. Now, he is good for the most part and will at least take a few nibbles or snack for most meals and is more than holding his own now in the weight department.

Our OT suggested the small meals and watch what foods you offer as well and stick to more easily digestible foods.

How old are your boys?

they are 6 months old. They just get formula, cereal, some fruit and veggies. Max is starting to lose weight. They are so sleepy during the day and then wide awake at 4 am! We think it might be related.

Are they holding to their growth curve? And are you using the adjusted charts for them?