We're finally home from Melbourne and have had the ph probe and endoscopy or gastroscopy as they now call it here. I am totally exhausted!!!! After our plane trip there and being sent to the supported care unit Miller had the probe inserted and he did not sleep at ALL for the next 24 hrs. He hated the probe. He seemed especially unsettled when his level got down as low as 1.2 and stayed between 1 and 3 for 10 minutes yet we have been told by our GI his reflux is normal and he needs no meds. His endoscopy showed no damage off meds for a week so he says to stay that way. Apparently Miller refluxed 48 times in 24hrs but the only long reflux was at 3am (this is usually when we hear him coughing and choking the most) so he says his reflux is normal for his age. We then spent the rest of the visit with social workers and psychologists who gave me the impression I must have an alterior motive for wanting to give my baby drugs. All they are offering now (appart from a huge medical bill) is support from the social worker in dealing with having an unhappy baby. I feel relieved that I know Miller has no damage to his esophegus but I really feel like they are down playing the pain or annoyance of reflux.

Hopefully we'll get some rest tonight. Hubby and I shared a single bed in the hospital not that we even got to lay down for very long. It will be so good to sleep in my own bed tonight.

How frustrating to make that long trip only to be told your son requires no treatment! Since he's been taken off meds, maybe dosing him with Mylanta or Maalox would help with his discomfort. A dose at bedtime might help.

hey...so glad your home :)

Sorry Miller hates the probe, as you know Brooke was getting hers done at the same time, and Brooke coped very well....she was no different, Brooke is nearly 7 months tho, so maybe it is the age?
We dont get our results back until MOnday, but form what I could see on the probe, Brooke doesn't reflux as much as I thought she did.....altho I do know that from 2 weeks of age until 3 months when she was screaming and crying she was refluxing ALL of the time, and a probe at that age would have shown a completely different picture.

Hopefully Miller is on the improve, and altho his reflux was probably worse, he is slowly growing out of it :)

I agree, try an use mylanta when you know hes uncomfortable......and at least he doesn't need other meds right now.

I cant understand the need for social workers etc etc....unless they think your not coping........I was never given this option, and I can tell you now, when Brooke was yoonger I was NOT coping....I mean on the outside I was, but in the inside I was a wreck!! My ped even said to me once, for a mother of a reflux baby, who you (meaning me) claim is so bad, you are extremly calm and relaxed!!! (grrrrrr...I may have seen that way, but I was not)

Anyways I am so happy for you that Miller is not experiencing much pain, and that he is on the mend.
I will let you know what ours shows up as soon as I get the results.

How frustrating!I think it is important for all of us to remember that some reflux is normal in everyone. All kids reflux transiently. That is why the probe score , called the Boix Oschoa score, has a grade of 0-11 as normal, and anything 12 and over is considered GER (Maiya scored 40)!.

The thing i think too, is that they suffered so much for so long, that when they do reflux, even if it is not acidic when on meds, they hate the feeling. They still feel something in their throat bothering them too.


Could you get a copy of the ph probe report and sit with your ped or another Gi, so they can confirm and make you feel better.

I guess it is good knews that all is well, but it is disappointing too that they say nothing is wrong and that you just have a fussy baby! I know, for 4 months i was told that about maiya- it was very depressing.

Please tread very cautiosly with the social workers and the psychs....it sounds like they might be worried about Munchausen by Proxy.

It happened to my daughter with her daughter...but after 3 months she was diagnosed with a rare pancreatic birth defect that didn't surface until she was 3 yrs old. They were running circles trying to get the MBP claim....but there was nothing to base it on. My granddaughter used to vomit w/bile and had serious GI issues...it was because her body could not tolerate fat..the pancreas was not able to digest and process the fat.

I know that all you are concerned about is your child's welfare, but I hear in Australia they are quick to jump to the MBP claim. We had to do lots of research so that nothing happened...

I'm so sorry you went all that way to have Miller's symptoms downplayed! I agree w/ Lesley that a bedtime dose of mylanta might help since he's been taken off meds.

Does anyone know anything about otc zantac, pepcid, or prilosec? Not suggesting you try it, but maybe wondering if anyone knows anything.

I'm sorry that they are interrogating you, when you're only trying to help your baby. I have worried about MBP in the past, because I feel like people don't believe me very often. I hope they can see what a wonderful mom you are, and that Miller's health and comfort is what you are striving for.

Keep us updated, and enjoy sleeping in your own bed!

Oh crap!!!! It does appear they may be considering MBP from how they talked to us. At least it is both my hubby & myself who expressed concern so hopefully they will realise we can't both be ill. The social worker also witnessed first hand Miller choking & gagging & said "has the dr seen him do that?" so hopefully she understood my concern. Thanks for the warning guys.

We're going through that right now. emma has been on tons of treatments. some work better than others, however she is still cranky cries IN PAIN constantly. and they keep saying. well she's gaining wait...and somehow i feel like i'm being told that i'm somehow causing it or making it up. UGGH. You're not alone.

Oh crap!!!! It does appear they may be considering MBP from how they talked to us. At least it is both my hubby & myself who expressed concern so hopefully they will realise we can't both be ill. The social worker also witnessed first hand Miller choking & gagging & said "has the dr seen him do that?" so hopefully she understood my concern. Thanks for the warning guys.

I take my husband to appointments every now and then for this very specific reason. I am a stay at home mom and I am the one who gets up with Emma a million times a night, so when her mouth turns "dusky" or blue or she starts gagging from the reflex it's normally me who see it. There's about 5-6 hours a DAY when my husband could see it besides weekends. I just feel like my every move, every comment is questioned. When emma was last hospitalized she DID turn bluish around the lips. her o2 DID drop, however oi called for the nurse down the hall. When he got in the room he turned on the light and sid "she looks a little pale but that's not cyanosis. I got her medical records and it's written as "Mother called nurse from pt's room claiming baby blue. Nurse turned on lights. O2 Sat normal, Baby color normal...etc. basically what he said and charted were not correct. It then goes on to report Pt. has reported episodes only while mother is present. Yet, her ph probe ended up showing tons of reflexing and one lasting 25 minutes long. But hey, it was ONLY while I was in the room. I know it's annoying. I jhave been there done that, living it right now. Know you are NOT alone!!!

Thats awful what they said!!!!

Just because its ''normal'' reflux doesn't mean the baby is not in pain with it surely??

**sigh** i too feel like the drs seem to think we are neurotic first time parents who are just moaning because our baby cries alot!!! It drives me nuts.

I was the one who told the dr she had reflux and not colic and we all def seem to know more about reflux then the drs most of the time.

Hail to the internet i say!!!

Hugs to you all:hug:

im so sorry to hear what happened at ur appointment

im sure matthew "old" paed thought i had MBP i say old as we have changed him and hospitasl now as ive had enough

matthew old paed told me matthew doesnt have apnoea, hes not going to die and is normal, 2 months later he was dx with central sleep apnoea so i was mad and happy at the same time (happy as i had a dx to shove in his face)

he also said to me all people suffer from relfux they just cope with it so matthew should, which is crap normal to one person may not be normal for another, just becuase shes refluxing normlaly doesnt mean shes not in pain and not hurting

sorry to hear this i hope u can sort it out soon