Lena
08-29-2006, 08:59 PM
Hello,
My daughter just turned three and was diagnosed at a few weeks old with GERD. She also was diagnosed with pyloric stenosis, having a pylorotomy at 8 weeks. She has always been petite without an appetite but didn't take to solid foods well at all. After going completely on solids she started to slide off the charts. She is currently considered failure to thrive weighing in at 27.5 lbs and about 38 inches tall.
She has had two EGD's the first coming back with esophagitis, stomach inflamation, ulceration in the small intestine and Chronic Duodenitis. She was then upped to 45mg/day of prevacid (her current dose) from 30mg/day. 6 months later she was scoped again, her esophagus and stomach looked great and the intestine was much improved.
Her pH probe showed severe GERD, refluxing in the hundreds. Her longest episode was over 40 minutes long with a pH hovering at 1.2. Her lowest acid level was .3.
After the pH probe her current peds GI (Children's Hospital of the King's Daughters in Norfolk, VA) said he wanted to do a fundo and feeding tube. We consulted a pediatric surgeon who agreed as well as her first peds GI at Rainbow Babies in Cleveland, OH. The only reason being her slow weight gain and occasional weight loss. She doesn't have any of the other problems that usually go along with GERD. I agreed to a feeding tube without fundo but was told no so we decided not to give up yet on getting her weight up.
We've tried supplements, feeding therapy and consulted with a nutritionist, none of which is working. We were pretty much threatened with a court order but her blood work came back in the safe zone. Her albumin was 3.9, prealbumin was "low" and she was slightly anemic. That being they have agreed to give us more time.
So with all that, can you have a skinny but healthy child? Where do you draw the line? I don't want to put her through a fundo and feeding tube if she's just being a stubborn toddler.
Lena
My daughter just turned three and was diagnosed at a few weeks old with GERD. She also was diagnosed with pyloric stenosis, having a pylorotomy at 8 weeks. She has always been petite without an appetite but didn't take to solid foods well at all. After going completely on solids she started to slide off the charts. She is currently considered failure to thrive weighing in at 27.5 lbs and about 38 inches tall.
She has had two EGD's the first coming back with esophagitis, stomach inflamation, ulceration in the small intestine and Chronic Duodenitis. She was then upped to 45mg/day of prevacid (her current dose) from 30mg/day. 6 months later she was scoped again, her esophagus and stomach looked great and the intestine was much improved.
Her pH probe showed severe GERD, refluxing in the hundreds. Her longest episode was over 40 minutes long with a pH hovering at 1.2. Her lowest acid level was .3.
After the pH probe her current peds GI (Children's Hospital of the King's Daughters in Norfolk, VA) said he wanted to do a fundo and feeding tube. We consulted a pediatric surgeon who agreed as well as her first peds GI at Rainbow Babies in Cleveland, OH. The only reason being her slow weight gain and occasional weight loss. She doesn't have any of the other problems that usually go along with GERD. I agreed to a feeding tube without fundo but was told no so we decided not to give up yet on getting her weight up.
We've tried supplements, feeding therapy and consulted with a nutritionist, none of which is working. We were pretty much threatened with a court order but her blood work came back in the safe zone. Her albumin was 3.9, prealbumin was "low" and she was slightly anemic. That being they have agreed to give us more time.
So with all that, can you have a skinny but healthy child? Where do you draw the line? I don't want to put her through a fundo and feeding tube if she's just being a stubborn toddler.
Lena