Brayden's GI wants to do his scope and ph probe outpatient.

His OT says that he has too many sensory issues and should have it done in patient.

Of course, the two do not communicate. The information is being passed from the OT to me to the nurse and then to the doctor. It's only two weeks from now so there isn't much time for insurance authorizations to change it to inpatient. Do I push for inpatient or just deal with it as an outpatient????

That is a hard one. What would be easier for Brayden and you? I htink you should do wha tis easier for Brayden and you. Sorry not that much help.:hug:

I agree with Shannon, if you think he needs inpatient to feel comfortable about post surgery, then push for it...if you want to get him home where he might feel more comfortable then stick with out patient...if the DR's don't have an agreed opinion, then make your own. You'll do whats best for Brayden.

But they should have an agreed opinion..thats not to cool that they don't comunicate

I've been wondering what the best way would be to do the Ph probe too if Connor has to have one. I just worry he would be constantly messing with it or would pull it out. At least at the hospital they are there if anything happens. Do you think Brayden would do ok staying at the hospital? That would be my only concern is would his mind be off the situation more if he were at home distracted by his toys ect. Hope that made sense.

I'm really torn. I think he'll freak out and possibly pull it out. But the nurse says you just go back and they re-insert it. Which I'm sure will be a nightmare since the initial insertion will be when he is knocked out for the scope...

My pediatrician said his daughter had it and they just distracted her by taking her to the aquarium...but his daughter didn't have sensory issues and she could talk (Brayden doesn't talk).

The hospital has a play room, toys and videos so he did pretty well when were there for 2 weeks in February...

I really just can't figure out what the best thing is.

We did James' as an inpatient for several reasons...

-We live about 40 minutes from the hospital so to have to drive back and forth with James by myself just wouldn't work... I worried too much about him messing with the probe while I was driving.

-If I had brought him home, how would I keep up with him, the box, pushing the buttons on the box, writing things down, etc. all while trying to keep up with my daughter, make dinner, clean the house, bathe the kids... the list goes on. The doctor and I agreed to get accurate readings it was better for us to spend the night at the hospital. I was so glad we did.

-James also had his scope done right before the probe so I had my concerns about the anethesia... he had never had it before and I just felt better being at the hospital and in no rush to go home.

Being at the hospital for 24 hours definitely took a lot of stress off of me. James was able to play in the playroom, walk the hallways, nap and all my attention was on him and his probe box.

James also has sensory issues. I think it would have been way to much for him to have to drive back and forth to the hospital. Riding in the car is not his favorite thing. Good luck and let us know what you decide.

I second Marcie. Ava had a scope and ph probe in early June (her second for both), and it's always been inpatient. She pulled the probe out several times on the first one, she was a day old, and this last time, I wasn't taking any chances. I say go inpatient: that way they'll be able to put it right back in if he pulls it out, and you'll have some peace of mind knowing the nurses are never far away. Sleep in the hospital isn't fun, but it's only 24 hours. I hope they decide soon! Why can't the "professionals" ever communicate?!?!?!

i just saw this since i was posting here anyway...i say if they are under 2 do it inpatient. it is a lot to deal with for me right now and im in a hospital. the stupid thing is always getting caught on something, and he is always messing with it. i wouldnt want to deal with this at home, but thats just my opinion.

older kids should be okay at home with it i would think.

Actually older kids are more likely to yank it out and so they prefer them to stay.
Mag was supposed to stay and I pulled her out of the hospital AMA. She never once tried to pull it out. She was much more comfortable in our house, with her own toys and with familar food.

No idea here as we have not had it done, but I would likely push for it to be done inpatient so that you have nurses onhand to get it back in should it come out and you not have to worry about waiting again to have it done if it goes south if you try it at home. Just my opinion, but again I do not know and can not be of much help here.

I was so lucky that most of my professionals worked as a team so I did not have a lot of the same problems with communication that I see here so often. When it did happen from time to time it was so hard to deal with and created big stalls in Iain's care. So sorry. {{{hugs}}}

we didnt get those armband things, i think if we would have had those it would have been easier. they just put it in, did a really awful tape job, and walked away. the first time i left him for about 10 seconds i came back and he was holding the end that was supposed to be in his throat in his hand. after that i put a nightgown on him that had hand cover ups, but he still constantly rubbed at it. one of our biggest problems was that he was hooked to about a million other wires, and they were always getting tangled and pulling on it. i guess it all depends on the child and situation.

Amy, that's how Ava's first probe was (1 day old), she was hooked up to a million other things...and I was trying to learn to bf. Looking back, it was kinda comical, but definitely very stressful. They didn't make "no-nos" small enough for her, and she pulled the probe out at least 3 times over the 24 hours (I had to leave the room when they put it back in, I was just a little emotional!). Maybe they didn't have any small enough to stay on Aaron's little arms?

I'm so glad you guys are home, and w/ some answers too!