Hello all! Tyler was DX with sensory integration when he was 4months old. He has been doing therapy since. I have been brushing him daily, as that is going better but he has other area's that are still very sensitive, back tummy & face. He has feeding issues because of his sensory issues so he is gtube feed most of what he needs. My questions is can someone recomend a book or web site(s) that can give me any info on Sensory integration and infants/toddlers? I am looking for more info. on ways to help him move past this. Thanks

Hugs~
Amy mom to Tyler 33wks 5lbs now 14.5months and 17.5lbs!!

You mean sensory integration *dysfunction* or something of that sort, right? I've posted a link to a sensory integration checklist. It's a sticky in this forum. You may also want to check out the book "The Out of Sync Child". It's really good. I believe the same auther has another book out called "The Out of Sync Child Has Fun" or something to that effect.

You mean sensory integration *dysfunction* or something of that sort, right? I've posted a link to a sensory integration checklist. It's a sticky in this forum. You may also want to check out the book "The Out of Sync Child". It's really good. I believe the same auther has another book out called "The Out of Sync Child Has Fun" or something to that effect.

Thanks thats the book I have heard of it before but couldn't for the life of me remeber the name.

Amy mom to Tyler 33wks 5lbs now 14.5months and 17.5lbs!!

Like Janette recommended, "The Out of Sync Child" is an excellent book. I bought it on a recommendation from my daughter's OT about two years ago and was actually looking for it tonight. James has been dx with sensory integration dysfunction (like my daughter was) and I need a refresher.

James has feeding issues too because of this. Hope things continue to improve for your son.

Sorry I can't be of much help I just wanted to say I hope things get better soon!

Have you heard anything about a wieght blanket? That seems to help my nephew. My sister goes through the same thing with her, now 10 yearold son. He started having issues at around 6 months (or atleast that what when we started to recognize it. Are you seeing any other symptoms? Sometimes you can see a difference in some of these kiddos if they are on a dairy and wheat free diet. You can find some more info on the autisim web site since it is all on the same spectrum. If you want more info then what Janette attached, let me know. My sister can innondate you if you would like. ;).

Good luck. It is hard to understand what these little ones go through. It's hard to comprehend how it feels to have a Sensory disorders. OUr DD dealt with it for some time. She had food related sensory issue and she over stimulates easily still (age 5)
Sue

Thanks to all who replied.

I have not yet gone out and got the book but hope to next week. My kids just started school this week so I am looking forward to a little free time!

Hopesfriend~ As of right now Tyler is getting 25-28oz of Nutramigen (orally 10oz and the rest via Gtube) and about 2-3oz of baby food. Other than that he isn't getting anything else. I have heard of the vest and have seen the blanket. I am going to ask the OT about it to see if this might help give him a sense of where he is when he is eating. Other than his delays I don't see anything else. He is a very happy baby, thank God for that. Pretty easy going too. He hates therapy all though it is getting better:-) Other than that not much has changed, I do notice that now that he has growen things have gotten a bit worse, he went from not quite 14lbs in May to now almost 18lbs, big change quickly!

Again thanks to all who has replied.

Hugs~
Amy mom to Tyler 33wks 5lbs now 14.5months and almost 18lbs!!!

Amy:

All the moms who have recommended The Out of Sync Child by Carol Cranowitz are correct. It is the Bible for Sensory Integration. I recommend it to all of my patient's moms. It is a quick read and has a helpful quiz inside. Not everything in the book applies to each child, but it addresses a wide sprectrum of issues with SI dysfunction. If you are doing the Wilbarger brushing protocol, most OT's do not recommend brushing the tummy,face, palms, or soles of feet due to the sensitivity. Please write with questions.

Robynne

I have a huge question. My Nephew is the one with PDD or Ashburger or behavioral issues depending on which doc you are talking to. But the bottom line is this little 8 year old boy is falling through a very large and jagged crack. He is able to hold it together at school but when he gets home he is very adjetated, angry, definant, abusive, and thinks of himself as stupid and can become selfabusive. In trying to get the school to help they have resorted to having to go to court. The school maintains there is nothing wrong with him even though there are doctors who say differently. He is such a sweet child at times and deserves something that will help him be a happyer little guy. Plus the other 5 children in the house need to know they are not going to be hurt or abused by him. There is not disapline that seems to work to deter his behavior and God forbid you step outside if his routines. We have been working to get help for him since kindergarten and to no avail. At this point it is feeling like we are running out of time to help him as he is getting more and more recless (he snuck out of his house in the middle of the nige and sat down in the middle of the street on a corner because he was mad. He could have easily been hit by a car if one had come around the corner) We have not been able to find anyone to help because anyone who can does not take insurence. My sister and her husband have gone broke trying to pay for help for them and the school was there last home and they are moving slower then a snail. He is effected enough to be very difficult to handle but not enough for them to call him disabled. What do we do now?? Hope you can help with some ideas it is so hard to see him slowly failing and no one will stop it from happening before he gets worse.

Thank you
Sue

Hi Sue:

You sound very frustrated. What is important is that your relatives know their rights. They do have a child with a disability if your nephew was diagnosed with Asperger’s or PDD. Both of these diagnoses are in the autism spectrum. You should locate your state’s educational agency website. It should have information about the the Individuals with Disabilities Act (IDEA). You will also find the Notice of Procedural Safeguards, which is a description of your legal rights as the parent of a child with a disability under IDEA.

You can have one of your nephew’s physician’s fill out a form that the special education dept. will send them that will qualify him for special education services under a “other health impaired,” “speech handicapped,” or more specific diagnosis. The school district must assess your nephew. If you disagree with the school’s assessment of your nephew, you can request an independent educational evaluation (IEE). This can be done by a qualified person who is chosen by you and is not employed by your school. You have the right to request an IEE at public expense if you disagree with the educational evaluation provided by the school.

Sue, go to your state’s website and learn your rights. Your nephew should not be denied educational services. I have just been through this myself with my son. Your nephew’s parents have to learn to be his advocate, and they have the means to do that without spending money…I promise J


Robynne

What the school is saying is that he is fine in school. He doesn't have behavioral issues while he is there. He is learning at normal speed. So as far as they are concerned, The school is meeting thrier requirement. But they don't see behind the scene when they have to force him (litterally) into the car they have to fight with the clothes he's wearing, if the hair spray sprayed in the wrong place, if someone touches the door before he does. He will scream (and I mean scream) the entire drive to the school and when he does get out of the van it stops and it doesn't start again until he is back in the van, I'd say at least one day out of the week he will flat out refuse to get out of the van and my sister can figure out how to get him out without humiliating him. At what point is this something he can or can't control. And What we have been told is we have to be careful of his self-essteem.

My sister is now at the point where there is an attorney and they are going to court. Mean while my nephew suffers.

I will try the web site so we can be as informed as we can before court.
Thank you
Sue

Sue:

Being the devil's advocate, the school system is going to say your nephew has to have an "educational need" to qualify for special education, as I am sure your sister has heard over and over again. If your nephew is as obsessive and compulsive about his daily routine and with interruptions in addition to sensory integration dysfunction, it does not sound like he would be able to concentrate on his work at school. Paleeeeeeez have your sister go visit the state website. She should not have to hire her own attorney. The state education agency will set up a due process hearing if need be. You can request that an ARD (annual review and dismissal committee) conduct a functional behavioral assessment (FBA). From this, they can develop a behavioral intervention plan (BIP) for your nephew.

Parents do not know the extent of their rights in the school system. Your sister must go read about her rights at this site. It will help her understand about due process in the school system and what she has the right to ask for. She can hire an advocate for $$$, or she can read about how she can do this on her own. The state education agency has mediation services for your sister to access and they should have a toll-free parent information line.

Robynne

Robynne
I just spoke with my sister and she wanted me to tell you "thank you from the bottom of her heart". I'll will let you know what happens
God bless
Sue

Please keep me posted :)

Robynne

Is the head banging part of that? I am worried about my 15 month old that bangs his head on everything and everyone