Hey guys, it's been a long time since I"ve been on here. Things have been nutty down here.

Tucker is making big strides and is trying to crawl and is moving around all the time--which is wonderful, but creates huge issues for us since he's on a continuous feed. I think I posted something about this before, but it must have gotten lost in the snaffu with the system a while ago.

Any way, my question is this, what do you guys do to stop your kids from getting taggled up in the tubing at night. Tucker is all over his crib and we have to sleep with one eye opened to make sure he doesn't get the tubing wrapped around his neckl

I am no help on this one but I am sure others who can help will be along soon. I can not imagine havinng this concern as it is hard enough to keep kids untangled at the best of times let alone when they are "tethered". :wink:

We actually find that Max doesn't do a lot of tossing and turning in his sleep but if he is still awake when he is in his crib we have to check him every 5-10 minutes to make sure he isn't hog-tied with the tube. Occasionally I've gone in and seen the tube around his neck - not tight around his neck, but still very frightening. But once he is asleep, he doesn't get all that tangled up. Maybe it's because for most of his life - until about a month ago - we made a bit of a nest for him in his bed which kind of kept him in one place when he was asleep so maybe because of that he is just not a tosser/turner in his sleep??

Sorry I'm not much help. But maybe if you have Tucker in a bit of a nest it may reduce his mobility a bit???

Vicky

Vicky,

Thanks so much. We are finding the same thing with Tucker as you do with Max...once he's asleep, he's usually okay but it's the getting him to sleep that is so difficult. He won't sleep in a nest anymore, he constantly tries to roll out of it and gets mad. We just moved him from his pack-n-play to a real crib (he was in the bassinette portion of p-n-p until now. but since he's able to sit up and tries to pull up we had to switch to crib for safety reasons) so I think he may just be going through an adjustment stage where he doesn't want to sleep. It's been taking forever to get him to sleep whereas he used to fall asleep almost immediately in pnp. ugh, transitions suck.

I was going to suggest a nest too! Sometimes with Megan we will lay a stuffed animal or blanket over the tube right next to her. That way it's not so easy to grab. I thought about taping it, but it needs to move with her too...?????????????????

We've tried the stuffed animal/blanket route. He just rolls around with the blanket & tubing together. He seems to be getting used to his crib---thank God, so he's sleeping better now. He only took 15 minutes to soothe to sleep tonight. Thanks for your help everyone.

I don't have any suggestions but I can commiserate. I have found Alex with the tube around his neck numerous times and it scares me to death. My solution is to just watch him like a hawk. He still sleeps in our room because of this exact problem.

On the rare occassions that we've had to feed Daniel overnight, I tape part of the tube to the back of his pajamas, so that at least for the first time he rolls over, the tube is around his midsection and not his neck.

I found it around my Tucker's (9 months) neck the first night. Ever since I put it down the back of neck through his onsie, and out the leg of his onsie. I tape it there a little before the connection to the feed tube. It has gotten around his legs and occasionally his waste, and sometimes it bends over and the pump alarm goes off- but it hasn't been around his neck. I just haven't had a good night sleep in 3 1/2 years, so my expectations are low. I also take him from his crib and sleep with my arm around him on a floor mattress half way through each night. It works for us. Good luck!

I have Payton wear long pants at night and run the tube down his pant leg so at least it's on the other end of his body and not by his neck.

We also only do night feeds and once he's out he's good to go, but when we were on continuous feeds, the pant leg trick worked well.

I would also wrap a piece of medical tape around the tube and then safety pin his tube to the inside of his onesie so it wouldn't pull on the button.

Hope that helps! Good luck with your mover and shaker!

I always worried how Shae-Lynne would get along as she got older b/c she is also on continuous feeds. Things seem to have a way of working out. She usually has someone else carry her bag during the day. She just completed her first year of school and did just fine. I will ask Roni for some tips about the nighttime. I think she too taped the tube up her back and out the top of her PJ's.

Good luck.