:coffee: Oh my you guys I dont know where to start I live in a nightmare!!!!!! You all said that it wasnt that bad and we did it and then she was VERY upset. So then brought her home gave her meds then she slept for a little! Then it all began! SHe was miserable!!!:smt076 :hissyfit: Screaming crying I couldnt move her one inch. She lost it. I look at the sight she is bleeding and it looks horrible! So then this morning its worse. She is swollen 2 inches all around the site I call our health nurse on base who is cool and tell her its an emergency and she comes flying over and is suprised at how bad it looks and then I try to give Emily meds and a tiny bolus of 20ccs and then it ballons the skin up and she looses it even more. It started to look as if it was infaltrating into the skin. I am so upset that this stuff always happens when my husband is gone! So then I call her dietician that was there when we did the procedure tell her, she says that she should be fine something is wrong we call the general surgeon and he tells us to go straight to the hospital. we do and to make a long story shorter they had to dialate her to 16 from 14 and that killed her and no anesthia! put in a new button do a dye study to make sure this one was going into the tummy and not the pertinum. It is now she is on mass meds misserable and still not moving. I am so overwhelmed!!!!:smt119 And the funny thing is our 2 year old is getting over being in the hospital for a week for out of control diahrea and he is at it again loosing his bottom end if you know what I mean. He is refusing to drink and I need to take him in tomorrow to get checked and hydrated. The thing is what am I going to do with the 2 others. While all this is transpiring my hubby is having a grand time gone i swear he says he is not but what ever. Thanks for letting me vent any ideas on how to make it. Oh yeah did I mention I am not form here moved not that long ago and havent meet anyone. And my family said the cant and my h cant they are scared to catch something cause they are on hold for his sisters delivery due in may. uggggghhhhhhh Beth:crybaby: :smt088 :favorites60:

Oh my, I am so sorry that you've had an awful time of it. I sure hope that Emily will be okay, now that they have changed things. As for your son.. his poor wee bottom.
I know what it's like to not have family close by... you just have to hang on in there..... get through 1/2 a day at a time.. if you think too far ahead, it seems impossible... I always know that this helped me to think this way.
:hug:

Thank you I needed that!!!

Sorry to hear that things didn't go the way they were suppose to. I hope Emily will start feeling better soon. And your son too.
Hang in there, it's tough but like Sara said don't think too far ahead. Looking back at when my hubby was gone for the year, I really don't know how I sometimes managed everything but it's possible and we all survived.
:hug: Here is a hug for you.

Hi Emily

You are doing great. You are coping. You did the right things to get it fixed. You are amazing doing this alone. You are reaching out for support. So pat yourself on the back, take a deep breath and as they all said above, deal with today.
They will get the mickey right be patient. I am so sorry it was straight forward. There is nothing worse than seeing your child in pain. But you are there for her and she knows it.

Big hug:35:

Sorry Beth. (I will never get peoples names straight.).

Beth...I am a little late on this, I sure hope Emily is feeling better by now!

So sorry it wasn't an easy procedure for Emily. :( How is she doing today?

Oh no, I am so sorry to hear things went so wrong! I hope they get things right this time!

May is kind of far off. Seems like maybe they could give you a hand right now when you really need it! Is your husband just on a trip or is he deployed somewhere?

Beth, I am so sorry that the procedure didnt go as smoothly as it should have. I do hope that she is feeling better soon.

I also hope that things improve with your son quickly. I do understand because we have no family in the area and no one will ever come and help when needed. As was said take half a day at a time and dont think to far ahead. I know that when I do it just makes me crazy.

I know for us what really helped is the fact that we belong to a great church that has helped us out now when needed. It took a while to find it and meet people but well worth it. I do hope that you get some relief soon.


Melanie

Ho guys I made it through an other day. In reality I am very surprised!! Emily is doing a little better still so sore and moving a little bit but still even when I hold her she still leans way out and cries. Pluging her in is the worse and from all the excitment she is barfing her brains out. I am so sad and tired of this I thank you all so much!! The funniest thing is up here in wasnington its been beautiful and yesterday we got this huge storm in and dumped close to 4 inches where we live and we havent had snow in months, the reason we got it was cause not only is everything going wrong with the kids but the weather had to do it also. I told my husband I am going to go burry myself in the snow maybe it would be painless and i wont hear the kids screaming any more. You kow what he did started laughing. He thought it was the funniest thing every. I guess so because I hate ll weather less than 70 degrees. I wouldnt have made it pass the front door =). but really thank you all. I am really at the end of my rope with reflux and the military. I had to get out and stop my whole life and I dont mean to whine but I miss being me. I miss not worring about how many calories went into Emily and how much just came up. I told dan if the doctors and therapist were always barking in my ears and over my shoulder ALL the time it might not be so bad. Its not that I am a bad mom for the barking its just the al cant figure her out. For ever oral thing that goes down within 5 mintues it up. its stange. I am so sorry to b*tc* I am soooooo overwhelmed does anyone else ever feel as bad as I do??? Or have I hit looserville????? Thanks guys give a prayer for Emily she needs it!!!! Beth
p.s. pam--its cool!!

Does anyone know the remady it survive off No sleep?? If so I need it quick!!!


P.s. how can you calm yourself from throwing the pump out the window at all hours of the night??? hahaha going to try to sleep we will see how it works Beth

Beth, I so do understand because I have been where you are at right now. I dont understand why this has had to happen to our kids but it has and you will get past this. Remember this to shall pass that is what I keep telling myself over and over again.

You need to take some time for you so that you can be refreshed to deal with this all. I know that it can be very hard to find the time but please make some for your self it really does make a difference.

As for the pump there were so many nights that i just wanted to throw it out the window or just jump on it. Hang in there you are a good mom and your family is lucky to have you.


Melanie

Is she doing any better yet? I hope so. Please update us.

Christyn

HI Guys!!!!!!
I am sooo sorry I have been out of the swing of things for a while with spring break and Emily ups and downs and we are leaving for seattle for Ems GI appt on the 20th. Well here is the lastest and greatest. I have taken very close care of her and her tube is doing wonderful. She does not dare pull on it like she did her peg tube. She loves it. When she is off she is totaly free. I like the tube also. Pleople are not always looking at me strangley any more. The funniest thing is people would stop us when I would be changing her somewhere and ask what is the matter and I would just say she has a dirty diaper or something of that effect I never thought that they would be talking about her tube. Thank you for caring. Beth

Oh yeah Emily turned one today!!!!! I made it and so did she!!!

Awww Happy Birthday Emily!!!! :wav: :smt113:
:fest30: :party47: Hope you had a wonderful day!!!!