Tucker was just diagnosed with CP yesterday. Our pedi has been warning us that since he was so early and had so many issues at birth there was a chance he would have mild CP. We saw the neuro yesterday. He has what's called spastic diplegia. Neuro was very non-chalant about it. He doesn't think that CP has anything to do with Tucker's latest retching episodes. Although he is ordering an MRI and EEG to be sure he's not have seizures when he's retching, but since we can control the retching by having him on a pump 24 hrs/day, he seriously doubts that is it. (That's the whole reason we went to neuro b/c of the retching and possible neuro reason).

Does anyone else have experience with CP and GERD?

No experience here, but I'm glad you got a diagnosis. At least you know now what you're dealing with. :hug:

Sorry, I don't have experience either. I just wanted to wish you well. Hopefully this diagnosis will bring you some answers.

Sam does not have CP but has some undiagnosed neuro or genetic problem--still waitning for answers. Is he hypotonic (floppy) due to the CP. A lot of kids with neuro problems have GERD mainly because of low tone---mucsles not preventing the acid from coming up like it should.

If keeping him on the pump 24/7 helps with the retching it sounds like a volume thing to me. Sam will retch if he gets too much in his stomach. The fundo will change the shape of the stomach.

I hope that having a diagnosis will give you some answers.

Sorry to sound stupid, but what is CP? I know CF cystic fibrosis? The same?

Rachel--CP is cerebral palsey.

And Tucker's mom, my friend has experience with this. Her son has CP and has had two fundos with retching spells that wont go away. She is a member of this board, I will call her and tell her to check out your post. Hopefully she will be able to answer some questions for you.

Hi,
I am a friend of Carla, and I am not sure if I can help you per se, but I can at least try!
My son, Jackson spent his entire infancy in utter misery from reflux. At the same time he developed other physiological problems that seems to have a neurologic origin but the drs couldn't pinpoint it. They all felt like there was something else wrong, but none of them could diagnose it. To make a very long story short, He was in physical therapy since he was 8 weeks old, struggled to sit up, etc. Finally after all else failed, he had a fundo at 10 months. He wretched through that one in 10 weeks, and at 18 months old (july 1, 2005) he had his second fundo. Since 5 days after his surgery he started having very severe wretching spells. The only thing that stopped them was Zofran.

In the midst of all the gi issues, at 13 months he was diagnosed with mild CP. It was a long road until the diagnosis came to be. And it totally freaked me out. What I know is this: CP is such an enormous umbrella of symptoms that it is so difficult to tell what your child will look like with CP. They are all so different! Jackson has done so incredibly well. His neuro actually told me at his last check up that she was surprised that he was doing as well as he is, at least physically. He is walking and talking and just a little spitfire of a 2 year old boy!

Jack had the MRI done w/ anesthesia--not a big deal, in light of everything else he had gone through. The good thing about CP is that it doesn't ever get worse. It is what it is. If symptoms change or get worse over time, then its not CP.

Kids with neuro problems are much more likely to also have gi issues.

Jackson is on a lot of meds for his gi issues, including prevacid, nortriptyline, and neurontin. And of course the occassional zofran.

I would love to answer all your questions (to the best of my ability) and to tell you more. Why don't you email me your address and I can email you. I guess I am too new to give you my address in this post!

Hang in there!
erin

I'm happy for you that you have a diagnosis, Victoria. CP was one of the many things that the doctors have looked at for Evan, but he does not have it. Please keep us updated, okay?

Hi there Victoria. :hug: I don't have any experience with CP, but wnated to wish you well. Now that you have a diagnosis, hoepfully you'll be able to get all the services and assistance you need. Good luck, and please update us whe you can about how Tucker is going.