I was just wondering as we are all still trying to figure Jackson out :hairpull: . We have been Prilosec for about a month now and we definitely see a difference (mainly daytime hours) but still he is pretty pukey and fussy still especially in the evenings. Do you think he could have an intolerance to like dairy or soy or something in my milk? He has never had a rash or an reaction that I have ever seen. Could it be causing his reflux to be so bad though :dontknow:??

I am just not sure what to do next. I think I am going to give the nurse a call and ask her about this. If I should cut something out of my diet or try formula, I'll do anything at this point. We don't see a specialist until April and I am not sure my dh and I can make it to April living like this. Solids are becoming torture and I have been skipping the evening meal as all he does is scream and puke it. He use to eat like such a champ too. Anyone any ideas?? I might be going too far here, but I just think it has to be something, you know :dontknow:

What sorts of symptoms are you seeing? Bethy doesn't always have a rash/diaper rash...when she's exposed to dairy and soy (her triggers), she will usually have a couple of really runny (diarrhea-like) stools followed by miserable constipation, tons of refluxing and vomiting.

It is worth a call to the doc if you suspect something. If you're keeping a food log, it might be even more helpful in pinpointing trigger foods.

Before the MiraLax he would be constipated and then get diarrhea. Now that he is on MiraLax he isn't constipated and they are usually a little looser then mashed potatao consisitency sometimes looser. He is still refluxing/vomitting a lot but I have never tried to cut anything out of my diet. Maybe I will try and cut out dairy, I think I will call the nurse. I always think you guys are better help then the nurse though :doh: .

Boy, I wish I had better advice! (Like, eat pizza and drink beer--this will make everything better! *lol*)

There are so many things that could exacerbate this and I'll be honest--I didn't really start cutting stuff out until my GI and NP told me exactly what to do.

I'll look for the list of foods to avoid and will post the link.

Good luck!! :hug:

Here's the link:

http://www.infantrefluxdisease.com/forums/showthread.php?t=9278

Basically, it lists the ingredients to avoid under each heading--so if you're going to cut out dairy and soy, look under those headings and you'll find all the ingredients that will contain these offenders.

Let us know how it goes!

http://www.infantrefluxdisease.com/forums/showthread.php?t=8753

There's the dairy/soy free list. That's where I would start. Both my boys have been intolerant, AJ only got constipated and then a rash after giving whole milk. He still can't have milk at 2.5, but can have cheese etc. Evan got mucousy diarrhea and terrible reflux. None of his meds ever 'worked' though they helped until I went to eating 4 foods! That was at 11 mos and I decided to wean him to Neocate at 12 mos b/c he's sensitive to so much! Soy did give him eczema, but everything else just flared his reflux horribly. No one ever told me the 2 were related it took a lot of work on my own and I wish I would've figured it out sooner, I might've kept bfing past 12 mos. He was a new baby after getting all his intolerances out of my diet. Now keep in mind he's an extreme case. I generally reccomend cutting dairy AND soy for 2 wks (feel free to pm me) and then if things are going well, try soy to see what happens.

My kids are more extreme cases as well. My son is on Neocate after being breastfed for 7 months.

YES foods like milk and soy can really irrtate reflux without them being allergic. The intolerance symptoms can be GI in nature such as lots of reflux and/or vomiting and constipation and diarreah. The fact that the evening meal affects him so much also points to maybe something you have consistently then that you don't have at other times. The other thing that makes me think intolerance is the fact that he is breastfed only and is contipated????

I would go off the food to avoid list that the others posted and do a little experimenting. I would write down everything you eat, when he eats, and when you see something like spit up, vomiting, when he poops--when he cries or you hear him reflux "silently". You may be able to figure it out. This is how I figured out that in addition to milk and soy, my little guy was intolerant to peanuts.

I have not seen the list on here but The Breastfeeding Book by Dr William and Martha Sears has a GREAT section on figuring out offending foods while breastfeeding.

Just to warn you though, it is not always simple as the peach 80 described. Her kids and mine are extremes, but it is my only experience!!! It is worth pursuing though.

Good Luck!

Thank you all for you input. I just got off the phone with the nurse who had talked to the doctor and she said that they think i am overfeeding him at night. Which could be true because he comfort nurses a lot. The fact that he can't keep anything down in the evenings didn't seem to concern them. She told me that instead of nursing him to give him a bath and give him some tylenol. If he really wants to eat to give him a little rice cereal. So we will try not letting him nurse as much in the evenings and see. I am just sad because he is going to have to just be in pain with no kind of comfort. I asked her if she tought he could have some kind of intolerance and she said no she didn't so just that he is being overfed at night.

I just want some answers :smt022. I don't like the idea of just giving him tylenol, with his meds he shouldn't need tylenol everynight and it just masks the problem. I really don't know how we are going to make it until April :smt022 . I think I may try cutting out dairy though, it can't hurt right :dontknow:

You're right--it never hurts to try, but it sure is so tough when you can't figure out exactly what's wrong! :-(

If the nurse's suggestion doesn't work, go with your gut. If you feel like you'd like to try cutting out dairy, by all means go right ahead. Sometimes it just gives peace of mind to feel like you're doing something to try to help. And it's an added bonus if your hard work pays off!

:hug: Let us know how it goes!

Since Jackson is doing so well during on day on his med. and not as well in the evening and overnight, my first thought is not an intolerance or allergy, b/c then you should be seeing the reactions all the time. Although the nurse might be correct, I really think that his med. is running out. Can you ask the doctor about spitting the dosage, or better yet about giving him more for the evening and the night?

Great thinking Janette....:iconbigg: the meds wearing off sounds like a big possibility. The only reason I thought of an intolerance is that if you eat the same thing every afternoon and generally only have it in the afternoon, you would consistently see a reaction in the evening. Gavin didn't tolerate peanut butter and I figured it out because I only ate peanut butter every morning. I saw a reaction the same time frame each day. Although the nurse is a nurse, I would go with your gut.....mom usually knows best!

Once Evan got old enough though (around your baby's age) he did fine for the most part during the day. It was still evening and overnight when he really reacted. I think being up and moving around helped him forget about things and tended to keep things down better unlike at night when he too wanted to nurse non-stop and then had to lay down to sleep.

Sounds like a lot is going on here. I agree that you should see the reactions when you eat the foods that may trigger reflux or reactions, but there are delayed responses as well. For instance Curran will react to milk and start writhing on the ground within 15 to 30 minutes after ingestion. Within an hour we start to see the colon blows and they continue for 4 days afterwards in our experience of late. Whereas with corn we get the sore throat and writhing within the same time frame but his bowels do not explode for nearly 12 hours afterwards (this was 3 challenges for him and the same thing each time with faster reactions in terms of pain each time). It is so hard to say, but I would do elimination and see where it takes you.

I would also take a peek at those meds as Janette suggested as it could also be the case. By process you should be able to get a handle on it all but it will take time.

Great links gals! It is wonderful to see so much information here right at our fingertips!:iconbigg: